Hi I have just been diagnosed with a dermoid cyst on My right ovary after a few scary weeks and 2 MRI scans. I have an appt to see a gyneacologist in February to decide my treatment. I had tumour marker blood tests done which came back all clear. I really hope you get good news, make sure you ask lots if questions so you can put your mind at ease. Good luck xx

Hi all, 

thank you you for sharing your stories, I had tummy pains put down to IBS and stress, however had ca125 test which came out higher than expected, had scans yesterday that showed two cysts, one clear the other not. Now got to be referred to find results, feel sick with worry. I am 48 so age is against me. It feels weird discussing this, but as I am pretty much alone makes me feel not alone. I hope all of you are ok, I have looked at lots of treatments and scenarios overnight. All over the place. Thank you for sharing your stories with us. 

Paula xx 

hi, I have exactly the same symptoms, I have had bad acid reflux since May and now this week severe lower abdominal pain and in back and when I go toilet my ovaries and back hurt. I went to a and e and they gave me a CT scan which didnt show much. They have given me antibiotics, buy still have constant pain and twinges. Just wondered what was your diagnosis in the after, should I request an ultrasound scan, I am 52  what are your thoughts?

Hi everyone 

Just wanted to say how amazingly brave you all are. I am so glad I came across this thread I have found it very useful and supportive

Just wanted to share my story too as I'm also going through a very worrying time. 

I got taken into A&E by ambulance last Wednesday night due to severe lower abdominal pain and fainting. I was discharged after 7 hours of waiting. The Dr said it was midway pain and part of my menstrual cycle. Told me my bloods were normal.

On Friday the pain was still there so I called my Dr who suspected appendicitis. Within an hour I was back in hospital. At this point the nurses told me my blood results on Wednesday were actually abnormal and it seems I was fobbed off by A&E.

Following further tests including blood tests and ultra sounds. They found scarring on my right ovary suggesting a ruptured cyst and said I also have a 2cm cyst on my right ovary. I have lots of fluid in my pelvic area.. Deepest pool 3cm. They said it was a haemorrhagic cyst and I am awaiting blood results for markers of cancer 

I am 32 and I am so scared as my sister died aged 27 under very similar circumstances. Unfortunately the system failed my sister. She was being treated for thrush until they found the cyst was bigger than 10cm and subsequently had cancerous cells. Very tragic circumstances. 

I am worrying as I have all the symptoms my sister did.. full quickly, bloating, nausea, bleeding between periods, pain etc. But I think these are also symptoms of a ruptured cyst. I feel like the hospital never tell u the full story and due to covid I have been through the whole thing alone high on morphine so wasn't retaining much of the information given and felt I should have asked more questions.

I just hope my blood results come back OK. I have children and a fiance and I just can't bear the thought of something bad happening and me having to leave them. I don't like worrying my family so I just pretend Im starting to feel better and I'm not worried but I am. 

I am thankful to be able to share my story so far with all of you brave ladies. 

I wish you all well and pray you get good news. 

Stay strong and lots of love. Xx

Hi all

Hope you are all coping in this uncertain period! 
just wondering would you expect to have a ca125 to be done when finding any ovarian cyst. I don't feel at ease at the moment I went to the doctors with some irregular bleeding and some right pelvic pain, I had an ultrasound quite quickly which showed lots of follicles as I have pcos, a 4.2cm cyst and a polyp on my uterus. 
My Doctors words were it's doesn't appear to be anything serious but she would pass it to gynaecology and they may want to see me a bit sooner. I then received a letter with my referral saying the waiting time is 18 weeks. I of course understand the waiting time but I have had a cycle since then and the ovary pain has got a lot worse it was agony the day before my period. So I can tell it's not going anywhere. I feel a bit uneasy waiting so long when I havnt had any blood tests, no  look at my cervix and no checks of the cyst in the mean time.  I'm just looking for reassurance if this is normal? 
thanks so much 

Hi 

VicW,

Hope you are having a nice weekend!

I have been reading the posts re ovarian cysts for around 6 weeks now, having been recently diagnosed with one myself. This is the first time I’ve replied. 

I attended my GP with abnormal bleeding and pink mid cycle spotting along with sharp pains in my right pelvic area at the beginning of October. I am 47, and no sign on menopause yet. 

I have to say my GP took all my concerns seriously and firstly examined my cervix then took some swabs, and a urine sample which were all fine.

I had a scan at my local hospital 48 hours later and at first the radiographer could not find my right ovary and I needed a transvaginal scan and a yoga manoeuvre to help her locate it. I am very petite, so this concerned me greatly. 

Eventually after a very long time she announced that I had numerous fibroids and an ovarian cyst measuring 3.1cm on my right ovary. ( So not that large, she said, although lots of whispering between her and a colleague she asked to join her after locating the cyst ).

She assured me that she would take care of the monitoring of my cyst by rescanning in 6 weeks and that my GP would be in touch to arrange a blood test.

When my GP called a week later she said the cyst was made up of more than one part(her exact words) and I now wish I’d asked her to elaborate, but I didn’t. She said she’d refer me to gynae for my fibroids but not my cyst at the moment. She also said I needed a blood test but did not explain it was a CA125, however I had already googled it and knew that’s what it was.

My bloods came back normal at 14, and my repeat scan should have been yesterday, however was cancelled last minute due to staffing levels (I’m guessing Covid related). I asked while on the phone to be given another date and have now been told to come this Tuesday as they had a cancellation.

My symptoms have gotten a bit more noticeable in the last 6 weeks, although not sure if this is because I now know the cyst exists. I have intermittent pains and aches in that area, and I feel uncomfortable when I’m sitting for long periods of time at work in the crease where my leg meets my torso.( Possibly lymph nodes in groin ). I have also experienced mild lower back ache all on the right side. On the plus side I have no more bleeding at the mo. It’s worth saying that I’ve had the Mirena Coil for 3 years.

I have also made a back up appointment for the end of Nov for a private Gynae consultant in Edinburgh if I don’t have any success with the NHS. I work with the NHS so know the constraints they have at the moment so I’m willing to pay for more peace of mind if I have to. 

I think the majority of ovarian cysts turn out to be benign, however the negative effect that the worry and anxiety of having a cyst where you can’t see it can do a lot of damage to your emotional and mental health. I have been quietly freaking out about mine. 

 I would call your doctor again and ask more about the type of cyst you have and ask for a blood test to put your mind at rest while you are waiting for your gynae referral especially if your symptoms are getting worse. 

I lost my dad to bladder cancer when he was 45 and I was just 16. He ignored symptoms for years. This experience has taught me not to be afraid to talk to your GP out of politeness. 

Call your surgery again or call the gynae clinic and offer to take a cancellation should one become available. You are concerns are valid.

Hope all goes well.

Take good care of yourself

Hello!

My story is a little similar to yours.....abnormal blleding - very heavy and bleeding mid cycle etc.  Thorough exam by doctor, swabs etc then referal for a scan which has revealed a growth on my right kidney, two large fibroids and my right ovary measuring 9cm.  Sent for bloods which have revealed that I am anemic (heavy periods) and my kidney markers are elevated (tests repeated) but CA 125 within normal levels.

My doctor has referred me to urology and has recommended I get a mirena coil fitted to reduce bleeding(currently waiting assessment with sexual health) but there has been no mention of referal to gynae about the ovary and I am just a little all over the place.  I really do not want to be making a fuss, but wonder whether I shold call the surgery to request a discussion with a doctor (we no longer have a fmaily docotr as such and the practice is run by locums,....we tend to see a different doctor every time).

Thanks,

Sionyb

Hi everyone, I know this post has been open for a long time- thanks everyone for being so open with what's going on. I really would like to know some outcomes that people have had. I realise that people post when they are at the stage I'm at now and just waiting to see what going to happen!!

I am 45 and so far have no signs of the menopause. I have been having a bit of pain after sex and some very mild spotting between periods. My periods are still very regular. I have a copper coil fitted. The spotting started playing in my mind so I went to the docs. They referred me for an ultra sound and I have just been to the docs for the results.

They found a cyst 5x5x7 (I am assuming cm) they couldn't find my overies, either of them, in the normal way- I think he meant they were obstructed by the cyst. They also found fluid in the uterus. They also used the term thick cystic wall. I am now going to have the c125 blood test and I have been fast tracked to gynaecologist, so I will be seen in 2 weeks. 
the doctor said we are worried it might be something sinister- which obviously freaked me out!! 
would love to here if how things worked out for others- the next 2 weeks are going to be so stressful!!!

thanks!

Hey my advice would be try not to worry and don't become doctor google as that will worry you more. I went through hell with mine as I was diagnosed with ovarian cancer but luckily to cut a long story short after my op I had endometriosis. So I had to have my ovaries removed. I had all the c125 and it was all dome as my levels were going up so I can understand your worry honestly don't worry your surgeon will talk you through everything and my doctor was great with me advising me what to do etc. Be strong you will get sorted just keep asking questions if your not sure on things and keep on at your doctor if things dont get sorted. Im a year and half now post op. 

Thanks for replying. Sorry you went through such a terrible time but encouraging that you are now a year and a half post op! Take care! I'm trying to stay positive!

Hello,

I just wanted to add my recent experience here in case it can help anyone else as reading other people's stories really helped me when I was in the worrying and waiting stage. I am 37 and have no children.

I went to my GP in June with abdominal discomfort, bloating and constipation. Looking back my abdomen was harder than it should have been but I think it had happened so gradually I hadn't noticed. The GP initially thought IBS when discussing over the phone, but thankfully invited me for a physical examination. She identified a 'large mass' in my abdomen and after a negative pregnancy test seemed very worried. She did full bloods and manually examined my cervix as well. She made a gynae referral as best guess as to location of the mass. 

I was lucky to get an internal ultrasound within a few days. The sonographer confirmed the mass on my right ovary, she said the consultant would want an urgent MRI based on what she had seen. I saw the consultant a couple of days later who said the US showed a complex cyst so he would order tumour markers, CA125 and a couple of others and MRI. At the this point the cyst measured at 24cmx23cmx10cm. I had to wait a couple of weeks for the MRI, and another 3 weeks for the results. The tumour markers were normal and the MRI showed a complex cyst but according to the doctor didn't look 'sinister'. Due to the size it required removal by open surgery, and in tact in case there were any abnormal cells. It also needed removal of the ovary and fallopian tube but they would preserve everything else due to my age.

Luckily I only had to wait 5 weeks from MRI results for the surgery which I had at the end of Sept. All went smoothly and I am recovering well at 6 weeks post op now, it was nowhere near as bad as I thought. Histology showed it was a borderline ovarian tumour which means they want to keep an eye on the other ovary in case it returns. I have been advised if I want to start a family to get on with it as treatment for any return would be hysterectomy. 

The whole experience has been incredibly worrying, and I was driving myself crazy reading into what docs did or didn't say, whether I had heard news and what that might mean, panicking every time the phone rang. For the first time in these months I feel like I can focus on the future and relax again.

So anyone else in the same boat you are not alone, and try not to worry until you know what you are dealing with. One day at a time!

Hiya. 
I'm so glad that you got a quick (ish) diagnosis & surgery! I hope you're all healed now? 
I was diagnosed in pretty much the same way - my doctor diagnosed IBS. After a few more weeks of nausea, bloating, constant urination etc, the doctor said she'd send me for a scan ON MY GALLBLADDER My songographer found my 8cm simple cyst on the off chance. He named it 'big nasty'. He was great, had good banter. 
This was on my husbands 37th birthday, back in June. I had to go back to his parents house, where the whole family were waiting on me so we could start the bbq .... I was mortified. 
My doctor made an appointment for my CA125's the following Monday (2 days after the scan). The results were 20 ... so within normal levels. 
I'm down in the South West of Devon, so waiting times may be different, but; I was seen by the gynaecology 4 weeks later and then had surgery booked in for the 29th Sept - 3mths after diagnosis. 
I actually had surgery postponed until the 3rd Nov as my eldest son tested positive for covid two days before my surgery - always the best timing with teenagers  

Anyway - it's now 19 days recovery. I'm yet to hear anything about my biopsy. My pre op pregnancy test results were only added onto my file 3 days ago - so I'm assuming there is a backlog with the admin side. 
 

Here's hoping they come back unremarkable. 
Love to everyone that reads my ramblings ️ 

Hiya. 
I'm so glad that you got a quick (ish) diagnosis & surgery! I hope you're all healed now? 
I was diagnosed in pretty much the same way - my doctor diagnosed IBS. After a few more weeks of nausea, bloating, constant urination etc, the doctor said she'd send me for a scan ON MY GALLBLADDER My songographer found my 8cm simple cyst on the off chance. He named it 'big nasty'. He was great, had good banter. 
This was on my husbands 37th birthday, back in June. I had to go back to his parents house, where the whole family were waiting on me so we could start the bbq .... I was mortified. 
My doctor made an appointment for my CA125's the following Monday (2 days after the scan). The results were 20 ... so within normal levels. 
I'm down in the South West of Devon, so waiting times may be different, but; I was seen by the gynaecology 4 weeks later and then had surgery booked in for the 29th Sept - 3mths after diagnosis. 
I actually had surgery postponed until the 3rd Nov as my eldest son tested positive for covid two days before my surgery - always the best timing with teenagers  

Anyway - it's now 19 days recovery. I'm yet to hear anything about my biopsy. My pre op pregnancy test results were only added onto my file 3 days ago - so I'm assuming there is a backlog with the admin side. 
 

Here's hoping they come back unremarkable. 
Love to everyone that reads my ramblings ️