Hi I have just been diagnosed with a dermoid cyst on My right ovary after a few scary weeks and 2 MRI scans. I have an appt to see a gyneacologist in February to decide my treatment. I had tumour marker blood tests done which came back all clear. I really hope you get good news, make sure you ask lots if questions so you can put your mind at ease. Good luck xx

Hi all, 

thank you you for sharing your stories, I had tummy pains put down to IBS and stress, however had ca125 test which came out higher than expected, had scans yesterday that showed two cysts, one clear the other not. Now got to be referred to find results, feel sick with worry. I am 48 so age is against me. It feels weird discussing this, but as I am pretty much alone makes me feel not alone. I hope all of you are ok, I have looked at lots of treatments and scenarios overnight. All over the place. Thank you for sharing your stories with us. 

Paula xx 

Hi all. Just found this post while searching online. How is everyone now?  I had my first cyst 11 years ago when I was 25. It was 10cm and I had it removed after several agonising hospital visits. 3 years later when I had my daughter another cyst was found but it eventually went on it’s own. A few months ago despite losing weight on a diet, my stomach starter getting bigger and bigger. I don’t have a partner, so knew I couldn’t be pregnant. Whilst at a hospital appointment, the doctor examined me and advised I had a large abdominal mass. Told me to go home and await a CT. Longest weekend of my life followed, then I went to see my gp. She examined me and said I felt 38 weeks pregnant despite me saying physically impossible. She even checked for a heartbeat! I was sent for an emergency ultrasound which I had 48 hours later. (A week ago now). They discovered an 18cm cyst. This morning I had my appointment letters for a gynaecology referral and ct scan next week. I look pregnant, am in constant pain and it’s pressing on my bladder. I’m 36 with an 8 yr old and scared witless of it being cancer.

Hi ladies.....I'm not diagnosed just yet, but have all the symptoms. I go for blood testing on Monday and will have the scan date by Thursday. I'm very scared and I'm very emotional about it. Not for me, but because I have my 3 year old daughter. Please can you offer some support and comfort? Also can you share your symptoms with me. About 4 weeks ago (after my period finished 3 days before) my lower back started hurting so much I had muscle spasms, I could barely walk or sit. If I stayed in one position too long itll spasm if I try to change position. I was bloated and very gassy. The pain lasted 4 days and stayed as a n ache. I had a period a week ago and after that my right ovary began to ache and hurt periodically. Until it remains as an ache as well. My bloating and being gassy has been sporadic . I am still eating normally and dont feel that full after, so I can complete full meals and more. My urine is normal as well as my bowel movements. However,, when I need to have a bowel movement the pressure on my back is worse and my ovary starts hurting even more. I have heart burn and acid reflux most nights. I'm really scared ladies. Thank you x

Hi again,

Just wanted to update you all as I know we are all very anxious. The MDM panel met to discuss my almost 11cm ovarian cyst identified in a ct scan (suspected kidney stones) and MRI. I also had a slightly raised ca125 blood test (38) and thankfully they have said it is benign and it is just a dermoid cyst. I will be having surgery at some point to remove it. On the waiting list as urgent due to its size and being at a high risk of twisting or rupturing. Just playing the waiting game now but I am over the moon it doesn’t look like anything sinister. I hope you all have a positive outcome and can go back to enjoying your lives and not be all consumed by what is happening right now. Whatever happens we are stronger than we give ourselves credit for. All the best! Xx

Yesterday I spent hours in hospital. I had a chat with a registrar. Then an internal scan and abdominal scan. I then saw a consultant. Followed by bloods and a CT scan. My cyst is 25cm and they will be operating to remove it along with my right ovary, tubes and appendix next month. They see no reason to think it’s cancer, but cannot tell exactly what the cyst contains until it is removed. In regards to symptoms, until my stomach got the size it has (I’m measuring as if I was 28 weeks pregnant) I didn’t have any. I’m not getting pains around my right ovary, and I don’t eat much because I always feel full. The cyst is taking up my entire abdomen and pushing on my bladder, so I’m constantly going to the toilet. 

Only a couple of days wait for blood test result to come back xx

Hey, I've had ongoing pain from a cyst for two years! My pain was so horrific I couldn't physically leave my bed for two days at a time, and I'd throw up a lot. The pain was so severe (my friend said it sounded like I was in labour) that I've ended up in A&E twice.

I've seen four doctors over a two year period, and it's only recently that I've found out I have a 17cm ovarian cyst.. I'm only 23! The first doctor I saw told me the pain was due to being really constipated (???), so whenever I had severe abdominal pains I found taking Buscopan was the only thing that would relieve the pain and stop me feeling nauseaous. My most recent doctor said this made a lot of sense as the cyst was pressing on my bowels- therefore causing me to have irregular bowel movements.

Hopefully that might help with your pain! 

As vain as it is, the biggest problem for me has been constantly being mistaken for 5 months pregnant. I'm 5ft3 and a size 6, yet I can't remember the last time i haven't felt fat or someone hasn't made a joke about it. Even the gp that sent me for the ultrasound said "if you hadn't had told me you were having stomach problems I'd have just thought you were 5 months pregnant". 

I came on here because I have had to wait two weeks for an "emergency" consultation in prep for my operation, that's in a few days and I'm still yet to find out when the op will be. In the meantime I'm just freaking out whether it's possible it might be cancerous.

xx

Hi Katie,

I feel your pain. I have had a cyst and i have had it for at least a year and a half but I suspect even longer than that. It was first identified when I was pregnant and it was just under 3cm in May 2018 but was told it was just a normal pregnancy cyst and it would go away by itself so was never followed up or mentioned again in any further ultrasounds during my pregnancy then around 2 months ago I started getting bowel problems and severe pain on my left hand side and I remembered I was told I had a cyst during pregnancy and it started to add up. However, I wasn't taken seriously on arrival at A&E. The doctor (male) dismissed it as premenstrual pain! Bearing in mind I have been through two labours and do know a thing or two about pain, I politely said it was not (!!!) and that the pain was on par with labour contractions. Then they found blood in my urine and suspected it was kidney stones so I had a CT scan and low and behold it was pain from an ovarian cyst despite them not believing me measuring almost 11cm. I am having it removed next month (thankfully) and the MRI shows it is a dermoid cyst and most likely benign so try not to worry too much as I know cysts are fairly common and often not sinister but I do empathise with people thinking you are pregnant. I have had this for the last three years! Although I am no size 6, size 12/14. Looking forward to having it out and not feeling so bloated. Good luck with having yours removed to and try to pay no attention to what other people think.    

Hi, i'm in a similar situation to yours Katie but unfortunately I feel I can’t offer much advice.

I’m 22, I’ve had pain for over 2 years on and off but initially my mum thought it was constipation pain so we put off going to a doctor. It went away for a little while, occasionally coming back but then a year and a half ago I went to A&E as it was extrememly severe and I knew for a fact it wasn’t constipation.

The doctor at A&E told me it was an aggravated appendix and to see my GP. I was in too much pain to make the GP appointment as I had no one to drive me and physically couldn’t walk. After a few days the pain subsided and after looking up about appendix issues I decided it was pointless going to the GP as it didn’t look likely that they would remove it if it wasn’t burst or painful and it no longer was (not to mention my social anxiety is against doctors haha). 

I was still experiencing pain but nothing too severe until early this year, I went to A&E in Feb and went back to my GP who referred me for an ultrascan where they’d found a 12cm cyst on my right ovary, though they didn’t tell me this for four months as that’s how long I had to wait to see a gynaecologist. The gynaecologist sent me for an MRI a week later, telling me my op would be done within 4 weeks as it was going through urgently due to how much pain I am in.

I had the MRI three weeks ago and today I had a follow-up appointment with the surgeon. The cyst is now 13cm and ‘doesn’t look cancerous’ (he was very careful not to say it isn’t) so they have put me on a non-urgent waiting list for the operation. They have now said there is a very slim chance of saving my ovary (three weeks ago i was told it would be a slim chance of losing it). They are unable to tell me when the surgery will be. I have been told to go back to A&E if the pain gets severe however on Monday I did call paramedics out and they made me feel like I was wasting their time. I’m just so scared I of it rupturing and becoming an emergency, I’ve read that they can rupture with strenuous exercise and for for the past week even walking to the toilet is strenuous for me. I can’t sleep, can’t eat and have been throwing up a lot from the pain.

I can completely emphasise with the vanity issues. I’m 5ft2ish and a size 6 myself, or WAS a size 6 - I look pregnant too. I can no longer wear any of my clothes without them pressing uncomfortably on the cyst or making me feel fat. Along with this I can’t go to work or even unpack the boxes from my recent house-move and it’s all making my anxiety and depression so much worse. 

I’m sorry for the long post, all the codeine, lack of sleep and stress is making it hard to organise my thoughts.

Hi All

Where to start?  So on Monday I had a pelvic ultrasound that was only requested by fluke.  An hour after I received a call from my Dr to say I had a 7cm cyst on left overy and 3cm cyst on the other...bear in mind I had a hysterectomy in 2012.  I was fast tracked to see gynaecologist whom I saw today.  She explained that the 3cm cyst with slight bleeding was not a concern, but the large cyst did not present as normal there were solid spots? I’ve been sent for Ca125 CEA Bhcg bloods (also done today) and have a CT scan on Monday.  I’m only 43 and I have had no other symptoms really.  Had ULtrasound of abdomen kidneys, liver etc that was normal 4 weeks ago.  The cysts were picked up via TV ultrasound.  She said they needed to see what dealing with as op to remove would be different if something nasty found.  I’m trying to be positive.  Every hour feels like a day! Xxx 

Hi my name's Katie I had an ultra sound scan an eternal 3 days ago in which they found a 20cm fluid based cyst next to my ovary, I've also had recent blood tests done which all came back clear, should i be worried??? Xxx

Hi my name's Katie I had an ultra sound scan an eternal 3 days ago in which they found a 20cm fluid based cyst next to my ovary, I've also had recent blood tests done which all came back clear, should i be worried??? Xxx

Although I can’t guarantee it, I’d say that it’s a normal cyst.  I have just had abnormal cysts detected, had bloods done and CT scan and it came back as not cancer.  I also empathise as the waiting is the hardest part.  Stay positive. 

Thanks for the reply hun. He didn't seem that worried after doing the ultrasound, he just said it's 20cm full of fluid an that he would send it of to a gynocologyst for them to have their 2pence worth (His words) an that I should just wait to hear back from them. I just hate the waiting because I panick so much with stuff like this an I'm scared in case it ruptures xx

Which blood test did you have? Do you know if it was a CA-125? If this comes back low you should have nothing to worry about. 20cm is giant though and like you say there is a chance of rupturing (I just had a 12cm ovarian cyst removed) so I would say the sooner you have it removed the better. You may also experience episodic pain until it gets removed so perhaps ask for strong pain relief to use as and when required to manage the pain. I am awaiting the biopsy results but my CA-125 results were only slightly raised and they think it is just a benign dermoid cyst so finger’s crossed that is all it is. The waiting game is awful - I really do understand. Hope you find some comfort in knowing there are lots of us out there going through similar journeys. Take care xx

Hi I've been diagnosed with a cysts after going for a ultra sound I was refereed by my doctor due to having heavy periods for years.

The ultra sound picked up several cysts and one on my left overie that didn't look right so the ultra sound lady referred me to the gynaecologist. I went to see him thinking nothing was wrong and he said I had a mass that   Didn't look right he said he wasn't concerned at this time but  gave me a option of waiting too see if the cyst grows or having a full hysterectomy as I'm 49.. I was in complete shock everything he was telling me was not going in I had  bloods done at the doctors c125 which came back at 76 which I thought was high at the time he said until he removes it he couldn't tell me what mass tumour it was.

i opted to wait 3 months to see if it had grown went for a scan last week it's grown and my bloods c125 have gone up to 106 now I've gone in to complete melt down I've googled everything on overian cysts to overian cancer which is exactly the same  symptoms I'm at my wits end with worry that the cyst is cancer I have a gynaecologist appointment in 2 weeks 4 November I'm petrified the waiting is just too much I just want to get it sorted.

I've had no symptoms until my last scan a week ago I'm having nigaly pain in my left side I'm just thinking the worst the days just seem like weeks. I know the gynaecologist is going to say remove everything hysterectomy I'm thinking the worst!! 

I feel for everyone on here and feel your worries and dispair at this worrying time I know we have too keep positive but it's hard.....

Hi ladies, 

This thread has really reassured me. I've been googling the hell out of everything from cysts to ovarian cancer. 

I notice people say that they suffered with heavy periods. has anyone experienced the opposite? I haven't had a period for 5 months. I'm on the contraceptive pill and usually as regular as clock work. 
I started getting symptoms alongside the elusive periods and my gut is something is just not quite right with me but can't put my finger on what it is. 

I went to see my GP who has been brilliant. I had bloods run for pretty much everything and they came back clear but she trusted that I wasn't feeling myself so referred me for an ultrasound. 
After the bloods came back ok I started to think maybe i was imagining it. Fast forward and I got a call on Friday just gone with my ultrasound results. 
They have picked up a 5cm 'mass' with a smaller mass growing from it, on my right ovary. I have been put on the 2 week pathway/ 2 week wait or urgent referral scheme to see a specialist gynaecologist, my appointment is for the 8th Nov. 

I had ca125 bloods taken yesterday, the results should be back by the end of the week. 

I feel completely in limbo. I don't even know what is going to happen at the specialist appointment? Can anyone reassure me or advise what usually happens next? 

I'm 24 years old (25 in a couple of weeks). My gut says whatever it is will be benign, but my biggest concern is that this is going to make it difficult or impossible for us to have children! :-( 

Thank you x 

Hey sweets 

what I'd say is don't panic easer said then done I know as I'm still waiting to see my gynaecologist.

I honestly became doctor google I panicked myself so much I wasn't sleeping and having panic attacks which I've never suffered from.

Your gynaecologist will talk through everything with you and as your really young I'm sure he will do everything he can to save your overies mine thinks I'm past that as I'm 49 lol. 
 

Try and stay positive sending you big hugs it's definitely a worry I know and try and stay off google..

Tar. 

I have just found this thread and found it really reassuring. I went to the doctors about a month ago with stomach pains and constipation. They initially thought it was a urine infection which I was given antibiotics for. When they didn't work my doctor referred me for blood tests and a scan. The blood tests came back ok. I paid for a private scan as nhs waiting time was long. 

The ultrasound scan found cysts on both my ovaries at least one of which is big...10-12cm and had pushed everything out of place down there. I asked if I should be worried at the ultrasound and she said not to not worry but they need more investigation... which obviously sent my mind into overdrive! 

I had ca125 blood tests a week ago (which I'm too scared to ring up for the results of!!) and an urgent referral to what I thought was gynaecology tomorrow. At least I thought it was until I got a letter through that says oncology on the top of it! Praying this is just a cross over in departments! 

Ive been having major panic attacks and anxiety over the last week to the point that I feel like I can't breath! 

Im 32 with no kids and a fear that I now never will

just wondering if anyone can advise what to expect at my appointment tomorrow? Or offer any words of reassurance? 
 

thanks x

Hi everyone, I know this post has been open for a long time- thanks everyone for being so open with what's going on. I really would like to know some outcomes that people have had. I realise that people post when they are at the stage I'm at now and just waiting to see what going to happen!!

I am 45 and so far have no signs of the menopause. I have been having a bit of pain after sex and some very mild spotting between periods. My periods are still very regular. I have a copper coil fitted. The spotting started playing in my mind so I went to the docs. They referred me for an ultra sound and I have just been to the docs for the results.

They found a cyst 5x5x7 (I am assuming cm) they couldn't find my overies, either of them, in the normal way- I think he meant they were obstructed by the cyst. They also found fluid in the uterus. They also used the term thick cystic wall. I am now going to have the c125 blood test and I have been fast tracked to gynaecologist, so I will be seen in 2 weeks. 
the doctor said we are worried it might be something sinister- which obviously freaked me out!! 
would love to here if how things worked out for others- the next 2 weeks are going to be so stressful!!!

thanks!

Hey my advice would be try not to worry and don't become doctor google as that will worry you more. I went through hell with mine as I was diagnosed with ovarian cancer but luckily to cut a long story short after my op I had endometriosis. So I had to have my ovaries removed. I had all the c125 and it was all dome as my levels were going up so I can understand your worry honestly don't worry your surgeon will talk you through everything and my doctor was great with me advising me what to do etc. Be strong you will get sorted just keep asking questions if your not sure on things and keep on at your doctor if things dont get sorted. Im a year and half now post op. 

Thanks for replying. Sorry you went through such a terrible time but encouraging that you are now a year and a half post op! Take care! I'm trying to stay positive!