Hi I have just been diagnosed with a dermoid cyst on My right ovary after a few scary weeks and 2 MRI scans. I have an appt to see a gyneacologist in February to decide my treatment. I had tumour marker blood tests done which came back all clear. I really hope you get good news, make sure you ask lots if questions so you can put your mind at ease. Good luck xx

Hi all, 

thank you you for sharing your stories, I had tummy pains put down to IBS and stress, however had ca125 test which came out higher than expected, had scans yesterday that showed two cysts, one clear the other not. Now got to be referred to find results, feel sick with worry. I am 48 so age is against me. It feels weird discussing this, but as I am pretty much alone makes me feel not alone. I hope all of you are ok, I have looked at lots of treatments and scenarios overnight. All over the place. Thank you for sharing your stories with us. 

Paula xx 

Hi

im in the same situation as you. They found a cyst on my right ovary. Do you know how long the wait is for the ca125 result? I haven’t had this test yet (literally just found out today after months of pain, fatigue etc. GP treated my anemia and I had to ask for a scan! Are you using NHS or private? I’m 37 with a 4 and 10 year old.

Hi everyone,

just out of hospital Tuesday the 5th of June 2019 with a cysts on my right ovary 5cm. I am still in pain, how long will the pain last? Will I get it again? On antibiotics for 3 weeks. Sobmuch I never asked at the hospital and only now realizing. I have an appointment in 6 weeks time so I guess I will ask then. I’m 44 on Sunday. Would a hysterectomy get rid of it one and for all? 

Thanks girls x

Hi,

i had my CA125 results quite quickly, all low and no signs of infection etc. I am so relieved that it’s not serious and everyone can stop treating me like glass lol! I am with the NHS, I think if it was showing signs of being serious, I would consider private treatment, how about you? Did you get your results yet? Have they offered you any follow up appointments yet?

Hi

sorry to hear your still in pain, it’s awful isn’t it? I have found that my pain comes and goes depending on my period cycle. 2 weeks before my period it was really bad, now it’s calmed down quite a bit. Just a few niggles now and then. I had the same, so many questions for the drs, after seeing them! Luckily, my GP called me a couple days after I left hospital and I was able to ask her. Maybe give your GP a call and see if they can help? 

I am not sure if a hysterectomy does get rid of it all. It sounds like it should, but I think I read somewhere that they can return anyway! Sorry I can’t help with that one. I hope you feel more comfortable soon 

I decided to go private and saw a dr on Wednesday. She said it’s unlikely I have cancer but will scan me again in 6 weeks to check for growth and also perform a smear test. I’ve been offered a endometrial ablation to help with periods and she thinks I could be going through early menopause!!! 

I’m the other way around was in hospital last

weekend in a lot of pain

had internal scan external scan and ct scan

reffered to my doctors for gynea referral and another scan in six weeks

thens out I can a 5+ cm ovarian cyst on right side and the same on right kidney

my doctors did ca 125 test on Friday apparently should know tuesday

im completely lost 

Hi all. Just found this post while searching online. How is everyone now?  I had my first cyst 11 years ago when I was 25. It was 10cm and I had it removed after several agonising hospital visits. 3 years later when I had my daughter another cyst was found but it eventually went on it’s own. A few months ago despite losing weight on a diet, my stomach starter getting bigger and bigger. I don’t have a partner, so knew I couldn’t be pregnant. Whilst at a hospital appointment, the doctor examined me and advised I had a large abdominal mass. Told me to go home and await a CT. Longest weekend of my life followed, then I went to see my gp. She examined me and said I felt 38 weeks pregnant despite me saying physically impossible. She even checked for a heartbeat! I was sent for an emergency ultrasound which I had 48 hours later. (A week ago now). They discovered an 18cm cyst. This morning I had my appointment letters for a gynaecology referral and ct scan next week. I look pregnant, am in constant pain and it’s pressing on my bladder. I’m 36 with an 8 yr old and scared witless of it being cancer.

Hi ladies.....I'm not diagnosed just yet, but have all the symptoms. I go for blood testing on Monday and will have the scan date by Thursday. I'm very scared and I'm very emotional about it. Not for me, but because I have my 3 year old daughter. Please can you offer some support and comfort? Also can you share your symptoms with me. About 4 weeks ago (after my period finished 3 days before) my lower back started hurting so much I had muscle spasms, I could barely walk or sit. If I stayed in one position too long itll spasm if I try to change position. I was bloated and very gassy. The pain lasted 4 days and stayed as a n ache. I had a period a week ago and after that my right ovary began to ache and hurt periodically. Until it remains as an ache as well. My bloating and being gassy has been sporadic . I am still eating normally and dont feel that full after, so I can complete full meals and more. My urine is normal as well as my bowel movements. However,, when I need to have a bowel movement the pressure on my back is worse and my ovary starts hurting even more. I have heart burn and acid reflux most nights. I'm really scared ladies. Thank you x

Hi again,

Just wanted to update you all as I know we are all very anxious. The MDM panel met to discuss my almost 11cm ovarian cyst identified in a ct scan (suspected kidney stones) and MRI. I also had a slightly raised ca125 blood test (38) and thankfully they have said it is benign and it is just a dermoid cyst. I will be having surgery at some point to remove it. On the waiting list as urgent due to its size and being at a high risk of twisting or rupturing. Just playing the waiting game now but I am over the moon it doesn’t look like anything sinister. I hope you all have a positive outcome and can go back to enjoying your lives and not be all consumed by what is happening right now. Whatever happens we are stronger than we give ourselves credit for. All the best! Xx

Yesterday I spent hours in hospital. I had a chat with a registrar. Then an internal scan and abdominal scan. I then saw a consultant. Followed by bloods and a CT scan. My cyst is 25cm and they will be operating to remove it along with my right ovary, tubes and appendix next month. They see no reason to think it’s cancer, but cannot tell exactly what the cyst contains until it is removed. In regards to symptoms, until my stomach got the size it has (I’m measuring as if I was 28 weeks pregnant) I didn’t have any. I’m not getting pains around my right ovary, and I don’t eat much because I always feel full. The cyst is taking up my entire abdomen and pushing on my bladder, so I’m constantly going to the toilet. 

Yesterday I spent hours in hospital. I had a chat with a registrar. Then an internal scan and abdominal scan. I then saw a consultant. Followed by bloods and a CT scan. My cyst is 25cm and they will be operating to remove it along with my right ovary, tubes and appendix next month. They see no reason to think it’s cancer, but cannot tell exactly what the cyst contains until it is removed. In regards to symptoms, until my stomach got the size it has (I’m measuring as if I was 28 weeks pregnant) I didn’t have any. I’m not getting pains around my right ovary, and I don’t eat much because I always feel full. The cyst is taking up my entire abdomen and pushing on my bladder, so I’m constantly going to the toilet.