Hi I have just been diagnosed with a dermoid cyst on My right ovary after a few scary weeks and 2 MRI scans. I have an appt to see a gyneacologist in February to decide my treatment. I had tumour marker blood tests done which came back all clear. I really hope you get good news, make sure you ask lots if questions so you can put your mind at ease. Good luck xx

Hi all, 

thank you you for sharing your stories, I had tummy pains put down to IBS and stress, however had ca125 test which came out higher than expected, had scans yesterday that showed two cysts, one clear the other not. Now got to be referred to find results, feel sick with worry. I am 48 so age is against me. It feels weird discussing this, but as I am pretty much alone makes me feel not alone. I hope all of you are ok, I have looked at lots of treatments and scenarios overnight. All over the place. Thank you for sharing your stories with us. 

Paula xx 

I'm so glad somebody kept this post active .It's been a real eye opener to read everyone's individual experiences and I love the support that everyone has been giving each other - it's beautiful!

I've been waiting for my CA125 results for the past 2 weeks and have an MRI scheduled for this Friday as I collapsed from what (the most bloody condescending) a&e doctors thought was a UTI that had travelled to my kidneys. They weren't wrong about the UTI but it was the tip of the iceberg. Just to be safe my GP arranged a CT scan to see if there were kidney stones left in my kidney, kidneys were fine but they saw a mass which they assumed was a fibroid. Went for an ultrasound and lo and behold the fibroid was actually a  'complex' multilocular 9cm ovarian cyst with suspicious features.

So bloods were taken and here I am. 26 years old, scheduled to wait until 8th May to find out if I have cancer or not. No kids, never been in love, up to my eyeballs in final year dissertation (which is due on the 7th May!) Presentations (due 8th May) and final year exams. I shouldn't even have to think about cancer let alone wait just under a month between blood being taken and waiting for results!

But oddly enough, this is the most calm I've ever felt about a situation in my life. There's no point worrying about what I can't change whether positive or negative. If anything it's making me appreciate everything I do have, family, friends, nature, a soon to be degree and constant internal joy. 

Thank you so much for your positivity ladies, I have just read these posts after finding I have two 7cm dermoids on my left ovary. I have an appt with the gynae on 7th May. Is it normal to have to fill in a questionnaire about my bladder function?

my dermoid was found 3 years ago when I was having a brain lesion investigated (turned out the be a virus phew!) they found one dermoid on an ultrasound and said they would monitor it annually but never did. Fast forward a few years and I found out I have BRCA2 mutation so I opted to have a preventative mastectomy, the surgeon found abnormal cells but no further action was needed as they had been removed. 

So after that scare I decided to chase up the monitoring of the dermoid. During the ultrasound they found that a new one had developed and grown to 7cm as well.

I am worried with my family history but hoping for the best!

Well I hope you are ok and its important to be positive. Just keep pushing for re-scans when necessary - I do feel that only you know when something is wrong with your body. Its been hard enough getting an appointment with my doctor let alone doing anything more. 

I have been lucky to buy into Benerden and they have been absolutely amazing - seen very fast, fast results - however like you have a dermoid cyst - at 5cms - we are now going to monitor it and re-scan in a couple of months - however my last montly cycle caused lots of pain. I am not sure where you live but I have been told about a scanning centre that I can pay to CT scans if I am not happy with waiting. So I may go ahead with this. However what was interest was due to my age was that alot of my IBS and other things are down to menophase. Again a subject that does not get discussed as much as it should. I do hope that you will get positive results and keep thinking that way. You all have been on a long journey 

Paula xx

Hi all,

I have read and re-read this thread to try and find some answers/consolation. I came into A&E on Tuesday with severe pain in my abdomen which the doctor was initially dismissive of and thought was premenstrual cramps! Then the urine sample showed blood so they suspected kidney stones. However the CT scan showed a 10cm ovarian cyst. I suspected it was to do with my left ovary as all the pain was concentrated there. Also, when i was pregnant last year with my second child they said i had a 2.8cm corpus luteum and that it was nothing to worry about and would go away. I had lots of ultrasounds due to concerns over baby's growth but they never mentioned the cyst again so i thought they must have been spot on that the cyst had gone by itself. However, now i am panicking as over a year later it has grown substantially and is now classed as giant. Plus for the last three weeks i have had lots of bowel problems akin to IBS which i now know can be a sign of ovarian cancer but they keep reassuring me that it is a dermoid cyst that is benign and age is on my side. They have taken a CA 125 blood test today and MRI booked for Saturday so i am playing the waiting game while losing my mind. I have two young children (5 year old and 7 months) that need me and i am beside myself with worry. Dont really know what i hope to get from this post as i know no-one can really reassure/prepare you for what will happen but guess it helps knowing i am not the only person going through this. Really hoping for positive outcomes for us all.

Jo

Hi

i am really glad I found this thread, especially the last post. I am in a similar situation. I had a pain my lower right side, suspected appendicitis. After an ultrasound, it was discovered that I have a decent size cyst on the right ovary. I have to have bloods done and more tests to be sure it’s not cancerous and to allow them to remove it safely without loosing the ovary. The dr has assured me that she is certain it is not cancer, no family history, no symptoms (apart from pain), age etc, but I can’t help bring so frightened that I am facing cancer. My children are young too and I have so much left of my life, I am not ready for this.

hope fully, we will all have good news soon. The wait is the worse bit x

Also, how is everyone coping with pain from a cyst? Mines not horrendous, but it’s bloody annoying and pain relief is making me nauseous xx

Just a quick update which I hope can be reassuring to everyone who is doing the horrendous wait. Got my CA125 results after 1 month waiting and it's not cancerous!! Thank GOD! I am due to have the cyst removed surgically this summer but I've had to sign to give permission to take the ovary if it is an absolute last resolution must (but fingers crossed it won't come to that(haven't even had kids yet)! 

The best thing I can recommend is to stay busy while you wait. I had to do exam revision and final year dissertation for my degree while I waited for CA125 results and although it was annoying it was honestly such an effective distraction. Get distracted and stay positive. It honestly works.

Good luck to everyone, stay positive and I hope we all get good CA125 results and successful surgeries. 

Xx

Just a quick update which I hope can be reassuring to everyone who is doing the horrendous wait. Got my CA125 results after 1 month waiting and it's not cancerous!! Thank GOD! I am due to have the cyst removed surgically this summer but I've had to sign to give permission to take the ovary if it is an absolute last resolution must (but fingers crossed it won't come to that(haven't even had kids yet)! 

The best thing I can recommend is to stay busy while you wait. I had to do exam revision and final year dissertation for my degree while I waited for CA125 results and although it was annoying it was honestly such an effective distraction. Get distracted and stay positive. It honestly works.

Good luck to everyone, stay positive and I hope we all get good CA125 results and successful surgeries. 

Xx

Hi,

I am eager to know how you are one year later :)

I am a similar age to you, started from what I thought was an issue with me coil (bloating random pains etc and random bouts of constipation)

The coil came out and I had an ultra sound which found a 'complex left ovarian cyst'

I have had tumor marker bloods which I was informed were normal.

I have my gynae clinic appt tomorrow which has shook me up from the letter as it says oncology gynae on it !

This thread has helped massively, the emotions I've had have not been easy to control.

As all this has happened within the space of a week!

Hope everyone is well 

X

Hi, sorry to just jump on this thread. Was wondering if you know why they referred you to oncology-gynae if your tumor markers appear fine? 

I'll give a lil a backstory as to why I'm asking;

3 months ago I was diagnosed with a 5cm haemorrhagic ovarian cyst on left ovary, after an emergency ultrasound from A&E due to the severe pain of the heamorrhage. They told me it's normal for my age (25 at the time) & id get a repeat scan in a couple months. The past 2 weeks the pain is back, my hair is thinning, nails weakening & lost weight, went for another emergency scan & they found it grew to 6cm. Did ca125 and it came back as 26 (I know that's within range not to be worried, but it's on the higher end so wondering if I should request another?) and other tumor markers appear fine. Have a meeting with consultant gynae next week and was wondering how your meeting at gynae clinic went, and if you have any clarification on the next steps to take? 
 

I really hope your, and everybody on here, results & discussions are all clear & not indicative on anything serious x