Hi I have just been diagnosed with a dermoid cyst on My right ovary after a few scary weeks and 2 MRI scans. I have an appt to see a gyneacologist in February to decide my treatment. I had tumour marker blood tests done which came back all clear. I really hope you get good news, make sure you ask lots if questions so you can put your mind at ease. Good luck xx

Hi all, 

thank you you for sharing your stories, I had tummy pains put down to IBS and stress, however had ca125 test which came out higher than expected, had scans yesterday that showed two cysts, one clear the other not. Now got to be referred to find results, feel sick with worry. I am 48 so age is against me. It feels weird discussing this, but as I am pretty much alone makes me feel not alone. I hope all of you are ok, I have looked at lots of treatments and scenarios overnight. All over the place. Thank you for sharing your stories with us. 

Paula xx 

I'm so glad somebody kept this post active .It's been a real eye opener to read everyone's individual experiences and I love the support that everyone has been giving each other - it's beautiful!

I've been waiting for my CA125 results for the past 2 weeks and have an MRI scheduled for this Friday as I collapsed from what (the most bloody condescending) a&e doctors thought was a UTI that had travelled to my kidneys. They weren't wrong about the UTI but it was the tip of the iceberg. Just to be safe my GP arranged a CT scan to see if there were kidney stones left in my kidney, kidneys were fine but they saw a mass which they assumed was a fibroid. Went for an ultrasound and lo and behold the fibroid was actually a  'complex' multilocular 9cm ovarian cyst with suspicious features.

So bloods were taken and here I am. 26 years old, scheduled to wait until 8th May to find out if I have cancer or not. No kids, never been in love, up to my eyeballs in final year dissertation (which is due on the 7th May!) Presentations (due 8th May) and final year exams. I shouldn't even have to think about cancer let alone wait just under a month between blood being taken and waiting for results!

But oddly enough, this is the most calm I've ever felt about a situation in my life. There's no point worrying about what I can't change whether positive or negative. If anything it's making me appreciate everything I do have, family, friends, nature, a soon to be degree and constant internal joy. 

Thank you so much for your positivity ladies, I have just read these posts after finding I have two 7cm dermoids on my left ovary. I have an appt with the gynae on 7th May. Is it normal to have to fill in a questionnaire about my bladder function?

my dermoid was found 3 years ago when I was having a brain lesion investigated (turned out the be a virus phew!) they found one dermoid on an ultrasound and said they would monitor it annually but never did. Fast forward a few years and I found out I have BRCA2 mutation so I opted to have a preventative mastectomy, the surgeon found abnormal cells but no further action was needed as they had been removed. 

So after that scare I decided to chase up the monitoring of the dermoid. During the ultrasound they found that a new one had developed and grown to 7cm as well.

I am worried with my family history but hoping for the best!

Well I hope you are ok and its important to be positive. Just keep pushing for re-scans when necessary - I do feel that only you know when something is wrong with your body. Its been hard enough getting an appointment with my doctor let alone doing anything more. 

I have been lucky to buy into Benerden and they have been absolutely amazing - seen very fast, fast results - however like you have a dermoid cyst - at 5cms - we are now going to monitor it and re-scan in a couple of months - however my last montly cycle caused lots of pain. I am not sure where you live but I have been told about a scanning centre that I can pay to CT scans if I am not happy with waiting. So I may go ahead with this. However what was interest was due to my age was that alot of my IBS and other things are down to menophase. Again a subject that does not get discussed as much as it should. I do hope that you will get positive results and keep thinking that way. You all have been on a long journey 

Paula xx

Hi all,

I have read and re-read this thread to try and find some answers/consolation. I came into A&E on Tuesday with severe pain in my abdomen which the doctor was initially dismissive of and thought was premenstrual cramps! Then the urine sample showed blood so they suspected kidney stones. However the CT scan showed a 10cm ovarian cyst. I suspected it was to do with my left ovary as all the pain was concentrated there. Also, when i was pregnant last year with my second child they said i had a 2.8cm corpus luteum and that it was nothing to worry about and would go away. I had lots of ultrasounds due to concerns over baby's growth but they never mentioned the cyst again so i thought they must have been spot on that the cyst had gone by itself. However, now i am panicking as over a year later it has grown substantially and is now classed as giant. Plus for the last three weeks i have had lots of bowel problems akin to IBS which i now know can be a sign of ovarian cancer but they keep reassuring me that it is a dermoid cyst that is benign and age is on my side. They have taken a CA 125 blood test today and MRI booked for Saturday so i am playing the waiting game while losing my mind. I have two young children (5 year old and 7 months) that need me and i am beside myself with worry. Dont really know what i hope to get from this post as i know no-one can really reassure/prepare you for what will happen but guess it helps knowing i am not the only person going through this. Really hoping for positive outcomes for us all.

Jo

Hi

i am really glad I found this thread, especially the last post. I am in a similar situation. I had a pain my lower right side, suspected appendicitis. After an ultrasound, it was discovered that I have a decent size cyst on the right ovary. I have to have bloods done and more tests to be sure it’s not cancerous and to allow them to remove it safely without loosing the ovary. The dr has assured me that she is certain it is not cancer, no family history, no symptoms (apart from pain), age etc, but I can’t help bring so frightened that I am facing cancer. My children are young too and I have so much left of my life, I am not ready for this.

hope fully, we will all have good news soon. The wait is the worse bit x

Hi

i am really glad I found this thread, especially the last post. I am in a similar situation. I had a pain my lower right side, suspected appendicitis. After an ultrasound, it was discovered that I have a decent size cyst on the right ovary. I have to have bloods done and more tests to be sure it’s not cancerous and to allow them to remove it safely without loosing the ovary. The dr has assured me that she is certain it is not cancer, no family history, no symptoms (apart from pain), age etc, but I can’t help bring so frightened that I am facing cancer. My children are young too and I have so much left of my life, I am not ready for this.

hope fully, we will all have good news soon. The wait is the worse bit x

Also, how is everyone coping with pain from a cyst? Mines not horrendous, but it’s bloody annoying and pain relief is making me nauseous xx

Hi

im in the same situation as you. They found a cyst on my right ovary. Do you know how long the wait is for the ca125 result? I haven’t had this test yet (literally just found out today after months of pain, fatigue etc. GP treated my anemia and I had to ask for a scan! Are you using NHS or private? I’m 37 with a 4 and 10 year old.

Hi everyone,

just out of hospital Tuesday the 5th of June 2019 with a cysts on my right ovary 5cm. I am still in pain, how long will the pain last? Will I get it again? On antibiotics for 3 weeks. Sobmuch I never asked at the hospital and only now realizing. I have an appointment in 6 weeks time so I guess I will ask then. I’m 44 on Sunday. Would a hysterectomy get rid of it one and for all? 

Thanks girls x

Hi,

i had my CA125 results quite quickly, all low and no signs of infection etc. I am so relieved that it’s not serious and everyone can stop treating me like glass lol! I am with the NHS, I think if it was showing signs of being serious, I would consider private treatment, how about you? Did you get your results yet? Have they offered you any follow up appointments yet?

Hi

sorry to hear your still in pain, it’s awful isn’t it? I have found that my pain comes and goes depending on my period cycle. 2 weeks before my period it was really bad, now it’s calmed down quite a bit. Just a few niggles now and then. I had the same, so many questions for the drs, after seeing them! Luckily, my GP called me a couple days after I left hospital and I was able to ask her. Maybe give your GP a call and see if they can help? 

I am not sure if a hysterectomy does get rid of it all. It sounds like it should, but I think I read somewhere that they can return anyway! Sorry I can’t help with that one. I hope you feel more comfortable soon 

I decided to go private and saw a dr on Wednesday. She said it’s unlikely I have cancer but will scan me again in 6 weeks to check for growth and also perform a smear test. I’ve been offered a endometrial ablation to help with periods and she thinks I could be going through early menopause!!! 

I’m the other way around was in hospital last

weekend in a lot of pain

had internal scan external scan and ct scan

reffered to my doctors for gynea referral and another scan in six weeks

thens out I can a 5+ cm ovarian cyst on right side and the same on right kidney

my doctors did ca 125 test on Friday apparently should know tuesday

im completely lost 

Hi all. Just found this post while searching online. How is everyone now?  I had my first cyst 11 years ago when I was 25. It was 10cm and I had it removed after several agonising hospital visits. 3 years later when I had my daughter another cyst was found but it eventually went on it’s own. A few months ago despite losing weight on a diet, my stomach starter getting bigger and bigger. I don’t have a partner, so knew I couldn’t be pregnant. Whilst at a hospital appointment, the doctor examined me and advised I had a large abdominal mass. Told me to go home and await a CT. Longest weekend of my life followed, then I went to see my gp. She examined me and said I felt 38 weeks pregnant despite me saying physically impossible. She even checked for a heartbeat! I was sent for an emergency ultrasound which I had 48 hours later. (A week ago now). They discovered an 18cm cyst. This morning I had my appointment letters for a gynaecology referral and ct scan next week. I look pregnant, am in constant pain and it’s pressing on my bladder. I’m 36 with an 8 yr old and scared witless of it being cancer.

Hi ladies.....I'm not diagnosed just yet, but have all the symptoms. I go for blood testing on Monday and will have the scan date by Thursday. I'm very scared and I'm very emotional about it. Not for me, but because I have my 3 year old daughter. Please can you offer some support and comfort? Also can you share your symptoms with me. About 4 weeks ago (after my period finished 3 days before) my lower back started hurting so much I had muscle spasms, I could barely walk or sit. If I stayed in one position too long itll spasm if I try to change position. I was bloated and very gassy. The pain lasted 4 days and stayed as a n ache. I had a period a week ago and after that my right ovary began to ache and hurt periodically. Until it remains as an ache as well. My bloating and being gassy has been sporadic . I am still eating normally and dont feel that full after, so I can complete full meals and more. My urine is normal as well as my bowel movements. However,, when I need to have a bowel movement the pressure on my back is worse and my ovary starts hurting even more. I have heart burn and acid reflux most nights. I'm really scared ladies. Thank you x

Hi again,

Just wanted to update you all as I know we are all very anxious. The MDM panel met to discuss my almost 11cm ovarian cyst identified in a ct scan (suspected kidney stones) and MRI. I also had a slightly raised ca125 blood test (38) and thankfully they have said it is benign and it is just a dermoid cyst. I will be having surgery at some point to remove it. On the waiting list as urgent due to its size and being at a high risk of twisting or rupturing. Just playing the waiting game now but I am over the moon it doesn’t look like anything sinister. I hope you all have a positive outcome and can go back to enjoying your lives and not be all consumed by what is happening right now. Whatever happens we are stronger than we give ourselves credit for. All the best! Xx