Hey there :) so.. I'm a fair bit further along than I ever thought I would be and still have my womb! I had polyps removed (of which one was cancerous) I'm now 18 months all clear.

i had the Mirena coil in and started slimming world. So far I've lost 4.5 stone and got to 36 on the BMi side of things. It's not easy.. I'd be lying if I said it was. I did have 6 months of prostap injections too which were horrendous but helped do the trick. I had an ultrasound yesterday and the lining of my womb is nice and thin and no polyps to be seen. 
I think a lot of emphasis is placed on weight which is so hard to hear and don't get me wrong I'm still a chunky monkey but it has helped me losing some weight. 
ive been told I'll be monitored long term now which is fine by me as it's such a traumatic thing to go through ! 
Please feel free to message me if you have any q's x

Hi 

thank you so much for your reply. It's made me feel a little better about the situation. I'm so glad things are going well for you now and well done on the weight loss! Iv lost 2 stone already and it definitely is not easy. I wish it was as easy to lose as it is to put on lol. In my October 2018 scan there were no polyps just a thick lining but they didn't seem concerned so it must not have been that thick. I am annoyed now it wasn't investigated at the time as now my mind is wandering thinking well what if there is something nasty in there now that could have been avoided does that make sense? I'm really not keen on the coil I'd rather try a progesterone pill first but I don't really know what to do for the best. Xx

Hi, I too am recently diagnosed with hyperplasia. Was offered but refused a coil, I've had one before and made everything worse. Am now taking progesterone tablets with repeat biopsies in May planned. My consultant told me I would be a candidate for a hysterectomy. I am currently having a massive, painful bleed and have stopped the tablets for a few days as felt it was making things worse. Had intense pain in my back and upper abdomen. Quite scary. I feel I'm worse off on the tablets. Anyone had similar? Thanks all, I know you're all going through  your own journeys so sending positive thoughts to you all xx

Hi

I too have recently diagnosed with Atypical endometrial hyperplasia, I turned 50 last year I hadn't had a period for over 12 months, then in February I had a bleed, GP referred me  to the hospital for tests, polyps found and the following week removed and biopsies taken.

I had all but forgotten about it tbh then last week had a phone call from hospital out the blue to tell me I had AEH and would need  LAVH BSO however on hold due to Covid 19 (totally understand that with everything that is going on) they fitted me with mirena coil last week so far all ok, never had one before so was a bit worried.  

I'm very lucky as we have grown up children, my heart goes out to all you younger ladies going through this. 

Sending positive thoughts out to everyone.

Keep safe. XXX

Hi

just thought I'd pop on for a quick update. I had a scan on 20th march, it was a specialist who did it, not a radiography and she wasn't concerned, she said the lining was a bit thick 17mm I was like wow that's bad isn't it she said not really as depending where you are in your cycle it can get that thick, even thicker. I told her I didn't know where I was as my cycles are not regular hence why I'm going through these investigations. She wasn't concerned as my biopsy had shown thick lining but no abnormal cells. She said it looked quite smooth, not lumpy, no polyps found and no cysts on ovaries found. I went to see the specialist on 23rd march. she booked me in for a hysteroscopy for June 1st for a look and to fit the mirena coil. She said if anything looks abnormal then another biopsy will be taken She is not concerned either as the polyp removed in Feb was benign and the biopsy taken was a substantial amount she said and it showed no abnormal cells. She did put me straight on Norethisterone 5mg 3 times a day. It's progesterone to thin the lining. I stopped spotting straight away. After about 10 days me and my partner attempted to have sex (sorry tmi) I say attempted as it had been a while I was really tense and couldn't really relax so we stopped. I started spotting the day after which turned into like a period bleed. It's been 3 weeks and I'm still spotting. Still taking the pills and getting cramps, not really bad cramps. Even though I was still spotting a bit me and my partner had sex again, I was more relaxed this time but we did have to stop because I started bleeding quite bad and lost a few big clots. The next day though it went back to light spotting. This has terrified me now and I'm so scared the lining has now turned abnormal or worse still into cancer. My hysteroscopy isn't for another month and I don't know whyt to do. Is it possible that having sex after not having it for a while has disturbed something that caused a big bleed or am I right in fearing the worse, sorry for the tmi 

nat x

X

Hey everyone I'm so sorry to post here I had a internal scan on Friday and they found out I have Atypical Endometrial Hyperplasia and there was a cyst which I've had for years in there and a mass of polyps and I'm so so worried and my anxiety is through the roof I have been bleeding in beteeen my periods bright red blood like I had cut myself out of nowhere and I'm always bib constant cramping and lower back pain. I don't kno what to do until I get my appointment through to see a consultant. I was wondering if anyone else is going through the same

Hi All

I am 34 and was diagnosed after a pipelle biopsy, as having Atypical Endometrial Hyperplasia. I have been given 100mg of Utrogestan to take daily for 3 months, at which point the biopsy will be repeated. I am in so much pain since starting the treatment, really severe cramps like period pains but 'sharper' if that makes sense?? I'm hoping the pain is indicative of the hormone treatment doing it's thing, but I'm unsure, can anybody offer any advice?

Thanks x

Hi, 

I came across these posts using good old Google. I am 29 and was diagnosed last July with Complex Hyperplasia Atypical after constantly bleeding for 3 years. I was advised to have the coil fitted and after much difficulty they decided to do in GA on the day they changed to spinal thats when they took the biopsy and 3 weeks late I got the call my surgeon recommended hysterectomy ASAP. My head has been mush since then and obviously my op has been delayed due to COVID-19. I'm just wondering if there are any ladies of similar ages who have had full hysterectomy including removal of ovaries. The though of being 30 and going through menopause scares me.