Feeling let down and stressed over possible endometrial cancer

Hi,

I have been bleeding consistently for 21 months which kept being dismissed as just being due to the contraceptive injection. After being fed up of all the bleeding, I moved to the pill 2.5 months ago. I was told if it doesn’t stop in a month, I’d need a scan. It didn’t stop, and I also started having really bad abdominal pain so I called exactly 28 days after starting the pill. 

I went for a scan that found my endometrium distended to 29mm due to a heterogenous, sinister, hypervascular lesion. I’m 34 and premenopausal. My doctor referred me for the 2ww urgent cancer pathway. Had an appointment booked by the hospital exactly 2 weeks from the date of my referral. Turned up to the appt and they had changed it for a further 4 weeks time, and had stepped me down from the 2WW pathway because “I don’t meet the criteria”. Basically, they made this decision because I’m 34 and premenopausal, but have completely ignored the highly concerning findings in my ultrasound report.

I’m trying to fight the step down, but my GP won’t get involved any further, the hospital are saying the decision would have been made considering everything and I even tried to go private but that came to a dead end.

I’m incredibly stressed about the possibility of have endometrial cancer, especially when my partner and I haven’t had children yet. I feel let down, like the NHS don’t care because this cancer in someone premenoupausal is rare - yet not impossible, especially given my ultrasound findings and long term symptoms. 

I just don’t know what else to do. My appointment is another 2.5 weeks away and then the biopsy results will take 6 weeks and I honestly don’t think I can go through another 8.5 weeks in the state I’m in. Just looking for anything anyone can say because I’m trying not to stress my family or partner out, but I really am just stuck

  • Hello CharlieT91

    I'm sorry to hear about the ongoing health problems that you've been experiencing, and following a recent ultrasound, you're now waiting to see the specialist. It's understandable that you're feeling anxious, and I'd imagine that your appointment being moved without the hospital telling you didn't help things either. 

    Although you may have to wait for biopsy results following your initial appointment. Hopefully, the specialists will be able to give you some reassurance when you see them. In the meantime, I wonder if you might find it helpful to talk things through with one of our nurses. I know they will be happy to listen and offer any advice, information and support they can. If you'd like to chat with them, they're available Monday to Friday, 9am to 5pm, on 0808 800 4040. 

    Keep in touch and let us know how you get on CharlieT91. We're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator