Hi Lis83,

The problem with the NHS app is that we get to see everything and no-one has updated the inter-doctor messages to make them less scary or to add context. 

The missing context is that 94% of people sent down a “suspect cancer” diagnostic pathway are found NOT to have cancer. 


Good luck
Dave

Sorry for the delay - I hope you are feeling ok this evening. Really hope it goes ok tomorrow, let us know you are ok when you can. Yes, that would be great if it could all be in one day!x

Hope you have had a good time away x

Hello, I am so pleased to have found this forum. It really makes such a difference to not feel alone. 

Wow, yes that is such a positive story, bless her. Good for her for living life to the full. Yes I agree, it is much better to know. Hopefully my appointment will bring reassurance x

Hi Dave, 

Thank you for your comment. That is so true, and to be fair, I didn't need to look through everything on the NHS app. I almost wish I hadn't, but yes that is so true. 

My sister has suffered from endo for years, and ended up having a hysterectomy last year at 45. I wonder if whatever is going on with me could be something similar. 

Thankfully we have just had half term so have been so busy, I haven't really had much time to think too much.

Thanks again for your message  

Hello, hope you are ok. Have been thinking about you getting your results, hope all is ok x

How are you getting on?x

Hello Lis83. Went today as an emotional wreck. Spent the whole consultation crying. I was given the results of still abnormal cells no advanced cancer, but I was so convinced I had full blown Stage 3 cancer. The MRI was clear. I have agreed to an hysterectomy I cannot go through the madness of not knowing tbh. The roller coaster is unreal. I am aware that once they take my womb it still has to be examined and a pathology report given so im not completely out of the dark. The main thing is the Surgeon said my obesity is the main factor and I should loose weight possibly jabs. The absolute stress, crying and turmoil is so much. I came home and went to bed. I then thought am I being dramatic...it has consumed me. I am grateful, but also feel like ive taken alot of my life and lifestyle for granted. Im grateful at this point. Thank you for checking in. Xxxx I hope you are ok? X

Sorry forgot to mention before the surgery they are fitting me with a mirena coil to hopefully.... Keep the abnormal cells at bay. I am so grateful. The op will be robotic in 4 to 6 weeks time. 

Ahh I am sorry to hear it was so emotional :( I completely understand the crying! I would be the same. So they will do the hysterectomy in 4-6 weeks? My sister had one in September last year at 45, she has suffered with endo for so long now. 

I went to see the gynaecologist again today, although he didn't have my scan results. The surgery sent a message yesterday to contact them about my results which made me panic. Haven't heard back from them yet after calling and doing an online request. But while I was with him this morning I showed him the notes on my NHS app which said the lining of my womb is thickened. I know I will not be able to have the hysteroscopy done easily, I think they might have to knock me out! X