Scared after seeing on my NHS app the words 'suspected gynaecological cancer'

Hello, 

I went to the Dr about 3 weeks ago after some bleeding in between periods and lower back pain.

Had a blood test done on Tuesday, which came back as abnormal. My CA125 result was 43. I spoke to the Dr and she said she would do a fast track referral for a scan and to see a gynecologist. The scan date has come through for 28th May. 

I am really scared after seeing on my NHS app the words 'suspected gynecological cancer'. I am 42.

Parents Reply
  • Haha yes, I woke about 3am and just can't go back to sleep :/ I will be glad when the weather cools down a bit.

    Sorry about the long wait :( it is hard waiting for results isn't it. I am ok thank you. Had my internal scan yesterday, so think I get the results on Thursday when I see the gynaecologist again. 

    Hope you are able to get a bit more sleep! Sunrise soon, I am tempted to just stay up now x

Children
  • Hope you managed to get back to sleep. The whole process is hard isn’t it. I was the same the night after my internal ultrasound and gynaecologist appointment a week ago as my mind wouldn’t stop panicking. Oddly I’ve been sleeping ok this week but I can feel myself getting more anxious as Monday gets closer for my general anaesthetic hystroscopy. I had my preop on Wednesday for blood tests, questions and an ecg. I’m not going to look at my blood tests results until Monday as I know if anything is up on them I’ll just spiral over the weekend. I do wish we could just do all the tests in a day and get the results the same day too as it’s the unknown that’s the hardest part. 

  • I'm going away for the weekend then back to work Monday hopefully, a massive distraction. Speak soon x

  • Hope you have a nice weekend. X

  • Sorry for the delay - I hope you are feeling ok this evening. Really hope it goes ok tomorrow, let us know you are ok when you can. Yes, that would be great if it could all be in one day!x

  • Hope you have had a good time away x

  • How are you getting on?x

  • Sorry forgot to mention before the surgery they are fitting me with a mirena coil to hopefully.... Keep the abnormal cells at bay. I am so grateful. The op will be robotic in 4 to 6 weeks time. 

  • Hello thanks for asking, I had my hysteroscopy under general anaesthetic on Monday. It was a long old day. I was scheduled to turn up at midday for the afternoon surgery list. In the end it was all a huge rush as unexpectedly something happened, I’m assuming an emergency of some kind which meant I was still waiting at 4.20 and then I had someone rush in and jog me down the corridor as they needed me prepped by 4.30pm or it would be cancelled. A downside of it was by the time I had come around and woke up enough to realise I was on a ward it was gone 6pm and no one from my procedure came to tell me anything. The consultant had originally told me he would let me know afterwards however that was when it was assumed I was going in at around 1.30. We did ask the nurses who could only tell me what had been written which was it was uncomplicated and a biopsy was taken. I wasn’t discharged until 10.30pm but I had my husband there and the nurses were very good. I’m now waiting on results. The discharge papers say follow up is required and will write with results however the consultant said the biopsy results will also show on my nhs app. This is a huge anxiety for me. I haven’t even looked on there at my blood test results as I’m too scared to see if my tumour marker is elevated as it will send me spiralling and right now burying my head in the sand is keeping me as level as can be. Urgh….!