Scared after seeing on my NHS app the words 'suspected gynaecological cancer'

Hello, 

I went to the Dr about 3 weeks ago after some bleeding in between periods and lower back pain.

Had a blood test done on Tuesday, which came back as abnormal. My CA125 result was 43. I spoke to the Dr and she said she would do a fast track referral for a scan and to see a gynecologist. The scan date has come through for 28th May. 

I am really scared after seeing on my NHS app the words 'suspected gynecological cancer'. I am 42.

  • Hello, I’m in a similar boat and saw your post as am awake at 1.12am having a panic attack and not able to sleep. I started bleeding last Friday after nearly 15 months of no periods. Today my ultrasound showed a thickness of 4.8 but no fibroids or polyps. I saw the gynaecologist afterwards who attempted to do a hystroscopy to do a biopsy but couldn’t due to previous ablation I’d had 10 years ago so I’m now waiting for a date to have it done under general anaesthetic. I feel drained and scared. Google is not a good place to be and I wish I could stop but I’m trying to find any reassurance I can. Good luck with your tests.

  • Hi, oh bless you, so sorry to read this. I was awake at that time too, feeling sick thinking about how my last smear hurt so much. Maybe I should phone them and say how worried I am?! 

    I hope you don't mind me asking, but what is the ablation? I had a colposcopy about 10 years ago, and they did the laser treatment bit.

    Do you know how long you will be waiting? I really hope you aren't waiting long. The wait is just awful. And I agree, google is not a good idea, and yet we all do it :/ trying to find some answers. Take good care x

  • I'm still awaiting results. 

    Functioning, but it's continually on my mind. It's very mentally draining. 

    I hope you get an appointment soon. Xxxx

  • Got my results a typical hyper plasma. Now got to go for MRI and another biopsy. More stress and researching. I'm soooo drained. 

  • Hello again, an ablation was a procedure I had done that I believe burns away the lining and helps stop or reduce very heavy periods. It did work really well for me and although I did have periods still they were manageable over the last 10 years. It does make it difficult for them to now take a biopsy though as it’s all a bit mangled and my gynaecologist yesterday said it was getting too much for me to handle with just a previous paracetamol before my appointment hence being referred for a general anaesthetic. I’m also freaked out by the words cancer on the nhs referral. It’s horrible isn’t it xx

  • Urgh it’s really hard isn’t it. I hope your next tests go well. I’m so very tired as neither my husband or I slept much last night, my watch said I’d had just over 3 hours in total. I had so hoped yesterday they were going to tell me all was ok. I’m 3 1/2 months out of having my colon removed and was just beginning to feel myself again. I guess I am just grateful that the nhs is looking after me. I’ve not had a call today so I’ve tried chasing them but I have not got any further finding out a timeframe. Going to do some gardening to try to stop myself getting so worked up when all I want to do is cry. Thanks for responding to me it does help getting support:-)

  • Hello Blush53, sorry to hear that lots of things seem to be going on with you. It makes you feel miserable I've also had sciatica. Gardening is lovely and being in nature. I've spent all day crying to the point I'm exhausted. So now watching reality TV!!!! I also have to tell myself off and think about those who do not have access to medical care in other countries. We are blessed with what we have. Hope the gardening is a distraction xxx

  • Oh no sciatica is rubbish. The m with you on crying till you’re exhausted. Failed at gardening…have had a call back and I have pre op on 27th and general anaesthetic hystroscopy on 1st. Another lot of crying commenced. I’m cross with myself I can’t seem to control my emotions at all. I also don’t want to see anyone I know except my husband so am cancelling things as I think I just need to wallow right now. I will be going on lots of walks outside in fresh air I just don’t want to get emotional in front of other people and I can’t trust myself not to right now. You are right though we are very lucky to have the nhs xx

  • I've only told my partner, dad and 1 friend. I haven't told anyone else but to be honest I've distanced myself from a lot of people because I cannot listen to their woos or tales. I haven't got the energy and working has helped to distract me massively. 

    Glad you got your appointment.. Fingers crossed xxxx