Hodgkins lymphoma? Awaiting scan.

I guess I don’t know why I’m here? Or what I even want to write/know. 

im a 33 yo female with an 11 year old daughter. I’m fairly healthy and an average weight, non smoker/drinker. 

since late last year I’ve been feeling run down, tired and after blood tests my folate levels and other levels where low. I started a course of folic acid to bring these levels back up.

just before Christmas I felt a lump in my neck and brushed it off with the check back in 2/3 weeks thought. Fast forward 3/4 month and I suddenly feel it again, this time it’s slightly larger and more noticeable to touch. 
Everybody urged me to get it checked. I visited the gp that week who felt it and said it felt like a small grape and she was going to refer me on a 2 week referral (she didn’t once mention cancer although in the bottom of my heart I knew what that referral was for). After getting home I stupidly looked on my nhs app which had all her notes and the suspected head and neck cancer referral, this broke me and my husband!
After an agonising week long wait for my ent appointment and having the camera up my nose and down my throat the dr said he could see nothing worrying and reassured me he believed it was just a swollen lymph node but would send me for an ultrasound scan just to make sure. 

we left the appointment full of hope and believing the anxiety would leave us now that he had given us some reassurance. It’s now been 1.5 weeks since that appointment and I have now grown another lump directly next to the original one and this lump has changed in the time of feeling it and feels much bigger already. I’ve also been getting horrendous electric shock type pains on my neck right through where the 2 lumps are. 

me and my husband have almost certainly convinced ourselves my scan is going to come back as Hodgkin’s lymphoma.
I have 6 days until my scan and I pray every morning I wake up and that the lumps will have disappeared which would mean they’re just a swollen lymph nodes. 

I don’t know what reply I’m looking for people, I guess I see this as a safe space as everybody here is either living in this bubble we currently are or have already gotten through the bubble. 

thank you for reading xx

  • Hi Daisy, I am sorry to hear you've not been feeling run down, and tired since last year. Waiting for the scan results is very hard to do, I was diagnosed with Chronic Lymphocytic Leukaemia (similar to non hodgkins) a year and 9 months ago now, I remember it like it was yesterday. Please don't read anything on the internet about symptoms, as it appears to be always negative. I believe this is a safe place here you are right. One thing I have learnt is to live with the here and now, please try not to worry until 6 days time. As no point worrying about something you don't know yet. 

    BIG Hug with you, I know it's easy to say don't worry but please try not to worry to much.

    xx

  • Thank you for the reply and I hope all is going well for you on your journey, huge hugs! 

    I think it’s the waiting that’s killing me, I sort of feel in limbo, not sure how I’m meant to feel or what I’m meant to think. I know whatever the result I can deal with and I have the most amazing support around me. I would just rather know for certain what is going on with my body than having time to just guess and come up with every scenario possible. Xx

  • I think feeling in limbo is how all people feel (It's a lonely place, our minds seem to go into overdrive with the not knowing, and what ifs when we await any procedures or test results.) It is good that you have the support around you Daisy. Xx