Not been on here in a while - 2 benign solitary fibrous tumours in neck- operation was scheduled for October 2025 - day before it was cancelled as no i.t.u bed for me...but as we were already down in the West Midlands (long way from home) I had an up to date mri and ct scan....then back home.
2weeks later had a follow up.clinic appointment-but had a ct with dye and was asked to lower trousers (seemed odd as tumours in neck) - went into consultant afterwards,he said that a previous scan showed 3 spots in my lungs...
So now on reading letters from consultant to my gp and myself it looks like I now have to have a biopsy on these things in my lungs....also on reading my neck tumours have grown and are compressing my vertebral artery which is obviously a cause for concern..
I have a great husband who helps me deal with all this,also family and friends....but im so so scared...
Would appreciate any thoughts x x
