Two week pathway for possible womb cancer

Hi, I’m currently on day 14 of my two week cancer pathway journey. I’m 32, wife and a mama to a 5’year old. not biologically mine, my wife carried her. Iv never had a period ever, there has never been a cause for this but I do have regular screenings. 
5 weeks ago I had my standard 6 Month biopsy, I have hyperplasia, thickened lining of my womb but I have never had bad cells. This time 2 weeks after my biopsy I had a letter stating I had areas of atypia and they were serious cause for concern and will be discussed in person, I was due an appointment follow up on 27th November so just thought that’s okay I’ll wait till then and find out what this all means.

2 days after the letter, at 5pm I have a phonecall from my consultant, saying she was on holiday but wanted to speak with me because she saw the letter had gone out and wanted to make sure I was informed of everything. 
she basically said the atypica is ‘pre cancerous’ cells but due to the histology report from the lab it was a concern and due to that she was putting me on a 2 week cancer pathway to investigate. Obviously this came has a huge shock. 
she believes I may have areas of cancer already in my womb. 
within 24 hours I had so many phonecall, to have bloods taken, a gynae face to face appointment and an mri scan. 

the gynae appointment told me I needed to go on a high dose of progesterone - 200mg a day - this is causing so much dizziness! I can’t look after my daughter for 2 hours when I take them. And he explained I have complex severe atypia. He also said I may need a hysterectomy and to keep it in mind. 

the mri scan was done Sunday just gone with buscopan. I was also told by my consultant after this was done it would all go to a multidisciplinary meeting? And then I’ll get the results. 

how long do you think I will be waiting? 
im so worried. And the not knowing is eating me up inside! I haven’t slept since Sunday just waiting for a letter. Do they send another letter like last time, or a phonecall? Or do I have to wait until 27th November! 

  • Hi myothernameismama, 

    What a stressful time it must be for you since you received that phone call from the consultant. I can imagine it was a bit of a shock to be told you were on the 2 week cancer pathway. At least it seems that things are moving fast and all these important tests and scans have been arranged quickly for you. It sounds like it isn't easy for you to function on that high dose progesterone and it must be really hard when you need to look after your daughter. 

    The MRI should hopefully shed some light on what is going on. The information we have on our website on the MRI scan mentions that you should expect to get your results within 1 or 2 weeks. 

    As you rightly say, it's the not knowing that is the hardest thing and the anxiety can really affect the way you feel on a daily basis and it can also seriously disrupt your sleep. Talk to your doctor if your quality of sleep doesn't improve in the coming days as I am sure they will be able to help with this. I am not sure whether they will send you a letter or phone call or if you will get the results on the 27th of November but if you contact your GP or your consultant's secretary for example they should be able to give you that information. It's important that you know what to expect and how you will be informed of these important results. 

    Waiting is often described here on the forum as the most difficult thing, a time when you feel a bit in limbo and I thought I would share with you our helpful tips on how to cope while waiting for news. 

    I keep everything crossed for you that you get clarity on all this very soon and that you won't have to wait much longer to get your results. Other members of our community may have been in a similar situation before and I hope they will come and say hello and share their story with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator