Hi Sandpiper.  It really is stressful waiting for scan results especially like you said it could be a fast growing cancer.  I would phone the secretary again today and everday until you get heard.  It really is not good enough to be told they are on a go slow ( this is your life they are talking about)  Why don't you contact PALS at your hospital and put in a complaint.  I have secondary cancer and found that you have to stand your ground and make yourself heard.  I am really praying that your scan comes back okay.  Big hugs.

Lee x

Thanks for your reply.

The secretary is notoriously hard to speak with as her phone automatically goes to a voicemail! Tried asking reception for an alternative number but told that is the only one.

I will keep hassling though!

Hi Sandpiper,

A very warm welcome to our forum.

This is always an anxious wait.

When did you have your scan? There are procedures to be followed by your consultant once your CT results are returned. Your consultant will hold regular MDT (multi disciplinary team) meetings - usually weekly, to discuss all of the cases that have been returned that week. This is where all of the different medical professionals who might be involved in your care, should you need it, discuss the findings and the best way forward. This all takes time, but means that by the time you attend for the results, your consultant will not only be able to give you the results, but also outline any treatment that might be needed.

Reports that are flagged as urgent would be shown to him as a matter of priority once they are received. Let's hope that it's good news that it's not been flagged up.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx.

Thank your reply and explanation of procedures which does make sense.

I guess I am just so scared and the not knowing is so hard so I felt by chasing up my results, it made me feel like I was doing something proactive.

Hi Jolamine,  you always explain things in such a concise way that really makes sense.  Thank you also for being on here and supporting so many people.

Lee x

Hi Sandpiper.  Jolamine's explanation does make sense.  Like me I would feel better by chasing things up as I hate waiting and not knowing is scary.  Hopefully you get your answers soon.

Lee x

Yes, had the consultants secretary explained the process to me like Jolamine did, it would have been easier to accept the wait.

As it was, I got a very abrupt explanation that consisted of telling me that the consultant had been out of the trust and had only returned on Monday and that he has a full week of appointments so I just need to wait.

There was zero empathy or compassion which made her comments hard to take.

Hi Leelaloo,

Thank you so much for your kind comments. I received such tremendous support in the early days of my diagnosis from people on this forum and appreciate the value of that support, so I do my best to try and pay that back. 

I hope that you enjoyed your holiday.

Kind regards,

Jolamine xx

Hi Sandpiper,

It is only natural to be scared at this point. You did the right thing to contact your consultant's secretary. It sounds as if she may have been a bit overwrought with the consultant being away and you maybe  got the brunt of this?

Please let us know when you get your results and remember that we are always here for you.

Kind regards,

Jolamine xx