Ca125 so worried

I had raised CA125 of 61 and sent for a scan which just showed fibroids. They repeated my bloods just 6 weeks later and its jumped to 138. If it was just fibroids would it still be rising. Worried somethings been missed and its more sinister as I know cancer in other places can cause CA125 to rise. Petrified mum of 2 littles. 

  • Hello Lawlan

    I'm sorry to hear that you're dealing with some health concerns at the moment. It's understandable that you're feeling anxious. 

    Fibroids can indeed cause a raised CA125 result and it's good to hear that nothing else was initially discovered during your scan. 

    What has the doctor said regarding your results? Are they planning to refer you to a specialist? Or will they continue to monitor things for you and make a referral if your symptoms don't settle? 

    If you think it might help to talk things through with one of our nurses, you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to offer any advice, information and support they can. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • I'm being referred again. I was so relieved when the fibroids were found as that explained the high reading but very concerned that they are still rising as thought it would just stay around the same. Surely it wouldn't rise that quickly if it was just fibroids. Scared out my wits right now 

  • Hello Lawlan ,  I hope things are going better for you . Slightly different circumstances . I was rushed into hospital a few years ago as an emergency with excruciating pelvic pain misdiagnosed and sent home . Trying to make along story short . I was then contacted to return to hospital for a ct scan or mri can’t remember which and kept in hospital. Apparently should not of been sent home . After a difficult time in hospital after a week transferred to another hospital caught Covid during 2022 covid was still about sent home again to be treated as an out patient, (not happy) I think what I’m trying to say is out patient appointment was when I was told I had a ca125 level of 161 and a large ovarian mass . Surgery was needed as a matter of urgency as the mass was large and cutting off my blood supply . Surgery eventually completed with mass removed and full hysterectomy. The mass was a large ovarian fibroma 14-11-7cm and benign . I never understood the ca125 thing being so high but thankful for a good outcome . Take care..thinking of you…x