32+ days wait for urgent suspected breast cancer referral

I (42f) found a lump in the upper right outer quadrant of my right breast. The lump is visible. I visited my GP on Friday 18th July. She examined me and found that the lump is hard, irregular and immobile. She measured it at 2 5cm by 1cm. She also found a smaller lump in my left breast that I was unaware of. 

I've been having gynaecological issues for most of my life. To the point that I've required iron infusions every 16 weeks for the last 4 years due to blood loss. My GP made an urgent referral to gynaecology in December 2023. I had a scan in September 2024. January 2025 the Gynaecologist phoned me to tell me that the scan showed fibroids and cysts. I already knew about those. He also said that there was a cystic area with solid components adjacent to the Ovarian cyst that was concerning and that he wanted me to have a CA125 and told me to have the Mirena Coil fitted. I refused. I had the CA125 but never heard from the Gynaecologist again. I had to get my GP to get the results of the CA125 off the system. It was slightly rasied at 49. After 14 unanswered emails from my GP to gynaecology, they finally gave up and referred me to another hospital. 

I still don't know what that cystic area with solid components is. I don't know for sure why my CA125 was raised or what the numbers are now. 

My GP made the urgent referral to the breast clinic on the 18th. My NHS app stated that if I hadn't heard anything by the 23rd to contact them. So I did. After 32 phone calls they finally answered and told me that I'd either hear from them by the end of next week (around 1st August) or the week after (around the 8th) and only then would I be able to ask to go on the cancellation list. I asked when I'm likely to be seen and was told that they received my referral on the 22st of July and they're currently processing referrals from.tbe 10th July. She said it's unlikely I'll see them before the middle of August at least. If not towards the end. I mentioned the Faster Diagnosis Standard and the aim to diagnose or rule out cancer within 28 days. She told me I was wrong and that they just have to see me within 28 days. But it doesn't look like that will happen either. 

I was at work when I made that phone call. I spent the next 6 hours doing my best not to break down in front of colleagues or the public. I cried for hours when I got home. I'm dealing with all of this on my own. I just want answers. I'm frightened and feel like I have no control over anything. I don't know how I'm supposed to function with all of this hanging over me. 

  • Does anybody have any advice? 

  • Hello SJx,

    I can imagine all the tests have been stressful recently and I'm sorry hear how you've been feeling. When we worry about cancer, it can be natural to overthink or think the worst but this can cause can anxiety and the best thing you can do is focus on other things while you wait for more information. I do hope you'll get an appointment by the end of August and if your symptoms change in anyway, let your GP know.

    In the meantime, we have some guidance around how to cope with waiting for news which I hope will be helpful.

    All the best to you,

    Moderator Anastasia

  • Hi SJx  I am so sorry to hear about all the horrible health issues that you have been having.  Waiting for an appointment is the worst possible thing ever, your mind goes into overdrive and if you are like me, google every symptom etc.  I know it is easier said than done but try and keep yourself busy with other stuff.  You do seem to be having very long waits for your appointments.  If you are not happy you can contact PALS at your hospital and lodge a complaint with them.  Their number will be on your hospitals website.  I know what you mean about not being in control.  I was the same when waiting , I just wanted to know what was wrong, and if it was cancer, get a treatment plan and get on with it.  I really wish you luck and please if you wish to chat I am happy to do that.  Sending you hugs.

    Lee x