9.2cm Ovarian cyst and years of symptoms

I have just had an ultrasound scan and discovered that I have a large ovarian cyst on my right ovary (9.2cm in diameter). The sonographer said she thinks it looks like a dermoid and that these are normally benign, but due to its size and nature of it pressing on other organs I will likely need surgery to remove it and also have it biopsied. I am 30 and relatively physically fit, so am hopeful it won’t be malignant however I have had severe pain and gastrointestinal symptoms for the past 4 yrs so I am slightly concerned that it may not be. My ca215 bloods came back within range which is reassuring, but I also know that this isn’t always full proof. I have had severe intermittent abdominal pain, sickness and steatorrhea for the last 4yrs (to the point where I am keeled over and been taken to A&E) at first this was investigated as gallbladder issues and then general IBS/pancreatic enzyme insufficiency and I have had endoscopies, colonoscopies, HIDA scans etc. I am now thinking that these episodes could have been cysts rupturing and/or ovarian torsion. I am very worried because I have had a multitude of ovarian cancer symptoms which have increased in the last year specifically: acid reflux, tummy pain, needing to wee frequently, extreme bloating, nausea, loss of appetite, shooting groin/upper leg pain, periods stopping or bleeding between cycles, bowel issues which I have overlooked as just hormonal changes maybe and IBS. I have an urgent referral to gynaecology yet I am very worried I may be palmed off again. I’m hoping someone on here may have some insight or have been through a similar ordeal? I feel very frustrated and overwhelmed with it all and I am now in constant pain/discomfort. I am aware that malignant dermoid cysts in young women are rare with 1-2% likelihood, but they do occur. It’s just very frightening and it feels like my body is screaming that something isn’t right!  

  • Hi Flowerchild94, 

    It seems like your sonographer was pretty confident that these dermoid cysts tend to be benign so try if you can not to worry too much. Hopefully you won't have to wait too long to be seen now that they have made an urgent referral to gynaecology and I hope that you will get some definite answers soon. 

    I hope that you will hear from others here who have been through a similar experience and that they will be along shortly to share it with you. Try and focus on the fact that there is very little chance that these dermoid cysts will be malignant but it can be unsettling when you feel something isn't right with your body and hopefully you will get some definite answers very soon. 

    I am keeping everything crossed for you that you will get to see the gynaecologist soon and that it all turns out to be nothing of concern. I will now let others here who have had to deal with such ovarian cysts come and say hello and share their story with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator