So scared I could be dealing with another Oesophageal Cancer diagnosis

Hi

I had cancer in my oesophagus about 2 years ago and it was cut out in an Oesophageal Mucousa Resection not sure of the spelling,  and I went back to 12 weekly biopsies, which I have been having now for years as they found Barrett's oesophagus. I got a phone call after my last biopsy to say the lab had founds some worrying changes but I would go in and have another EMR to cut it out again. However when I went into hospital to have this done they said they could not do it because of so much scarring on the oesophagus.  I am really scared now as to what this now means. They have said I am not able to have surgery to remove that part of the oesophagus as I am not strong enough to withstand the surgery. If it is cancer it looks as if it will just be chemo or.....  I don't know what. Has anyone else been through this. I am really scared now.

Parents
  • Hi,

    I was diagnosed with OC at Stage 4 in 2013 - inoperable due to the fact that the primary had grown around my aorta … which also meant that radiotherapy was ruled out. 

    Since then both targetted and immunotherapy are more widely available. Best talk to your cancer team to discuss the options available for you to choose from. 

    Try not to go into panic mode, surgery is just one of the options in treating this disease and is often coupled with chemo to reduce the risk of recurrence.

    Good luck!
    Dave

  • Hi Dave

    Thank you so much for replying to me. I sort of think I am in panic mode already. I does not help that mostly the only time I get to speak with anyone is when I am in theatre just before they knock me out. I don't know what is happening all I know for sure is that the EMR did not go ahead and that I need to wait on the path lab doing their work and I will get a phone call with the result. It is all getting to me now

  • Near panic is understandable given your situation. Waiting for biopsy results can feel like months, even when it is weeks. The “worrying changes” may not be cancer, maybe Barrett’s  or something more benign. 

    There should be a named cancer nurse available to answer any of your queries and concerns outside your ordinary appointments. His/her name should be on one of your hospital letters. 

    I hope your results come soon and that the news is good.

    Best wishes
    Dave

  • Hi Dave 

    Thank you again for you reply, sorry my name is Anne Marie just dawned on me that I never said so.

    I don't have a named nurse, only the surgeons name and I don't want to pester her. I think it is just a case of being patient and wait on the results again. It's funny I am scoped every 12 weeks and I am never really worried about the results s I feel fine but this time for some reason I am scared to death so to speak. Anyway I will just need to wait until I get the phone call to say everything is fine, and that I have worried needlessly. I don't even know why I am worried but this time I am. Thanks again Dave.

    Anne Marie

Reply
  • Hi Dave 

    Thank you again for you reply, sorry my name is Anne Marie just dawned on me that I never said so.

    I don't have a named nurse, only the surgeons name and I don't want to pester her. I think it is just a case of being patient and wait on the results again. It's funny I am scoped every 12 weeks and I am never really worried about the results s I feel fine but this time for some reason I am scared to death so to speak. Anyway I will just need to wait until I get the phone call to say everything is fine, and that I have worried needlessly. I don't even know why I am worried but this time I am. Thanks again Dave.

    Anne Marie

Children
No Data