So scared I could be dealing with another Oesophageal Cancer diagnosis

Hi

I had cancer in my oesophagus about 2 years ago and it was cut out in an Oesophageal Mucousa Resection not sure of the spelling,  and I went back to 12 weekly biopsies, which I have been having now for years as they found Barrett's oesophagus. I got a phone call after my last biopsy to say the lab had founds some worrying changes but I would go in and have another EMR to cut it out again. However when I went into hospital to have this done they said they could not do it because of so much scarring on the oesophagus.  I am really scared now as to what this now means. They have said I am not able to have surgery to remove that part of the oesophagus as I am not strong enough to withstand the surgery. If it is cancer it looks as if it will just be chemo or.....  I don't know what. Has anyone else been through this. I am really scared now.

Parents
  • Hi Scrapmum,

    Welcome to the forum. I can understand that facing the possibility of another oesophageal cancer diagnosis is deeply unsettling, especially after all you've already been through. 

    I hope other Cancer Chat members who have faced similar situations will be along shortly to talk with you and offer support.

    The other thing I want to mention is that it's crucial to have open discussions with your medical team about these possibilities. They can provide guidance tailored to your specific situation and help you understand the potential benefits and considerations of each treatment.

    If you feel the need to talk things through or seek additional information, our nurses are available on 0808 800 4040, Monday to Friday, from 9am to 5pm.

    Best wishes,
    Renata, Cancer Chat Moderator

  • Hi Renata

    Thank you for the welcome, although, I do wish I did not have to be welcomed so to speak.

    This endless waiting for the phone to ring is doing m head in,, why does it take the path labs so long to get a definitive diagnoses. To say I am scared about this is putting it very, very mildly.  I did think to phone the nurses, but to be honest there is nothing they can tell me. I just need to wait on the path lab diagnosing what if anything is wrong. What is worrying me is that I was put forward for an EMR because they had seen changes in my last biopsy and were going to take it away with another EMR but when they got down there they could not do it because of all the scarring from previous treatments and they extensive biopsies.that have been taken. It is the not knowing that is the worst thing. I can cope with anything if I know what it is but this not knowing is driving me mad.

Reply
  • Hi Renata

    Thank you for the welcome, although, I do wish I did not have to be welcomed so to speak.

    This endless waiting for the phone to ring is doing m head in,, why does it take the path labs so long to get a definitive diagnoses. To say I am scared about this is putting it very, very mildly.  I did think to phone the nurses, but to be honest there is nothing they can tell me. I just need to wait on the path lab diagnosing what if anything is wrong. What is worrying me is that I was put forward for an EMR because they had seen changes in my last biopsy and were going to take it away with another EMR but when they got down there they could not do it because of all the scarring from previous treatments and they extensive biopsies.that have been taken. It is the not knowing that is the worst thing. I can cope with anything if I know what it is but this not knowing is driving me mad.

Children
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