Telephone results vs face to face

Hi, anxiety is through the roof. Referred to breast clinic in February for discolouration and some dimpling and pain. After using cream for 2 weeks for possible dermatitis, consultant decided on punch biopsy to rule out IBC but was optimistic and said if benign, results would be given over the phone and this is also stated on my letter.

That was 3 weeks ago, team met yesterday and I got a phone call asking me to come in Friday morning for face to face. I'm now so worried and anxious.

Has anyone been called back in for face to face and everything been OK even though was expecting telephone results? 

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  • Hi Sussexgirl82 I wanted to wish you luck today with your appointment.  I was given the results of cancer diagnosis over the telephone so there doesn't seem to be any logical way that they tell you.  Good luck and fingers crossed for today.

  • Hi,

    That really is appalling and is very much counter to best practice guidelines which take into account the patient’s wellbeing. 

    I feel so cross on your behalf. 

    Best wishes
    Dave

  • Hi Dave,  thank you.  Not only did they tell me it was cancer but stage 4 cancer and it is incurable.  I feel let down by doctors as I was told the two tumors in my pelvis were benign firstly and they were just left and now it has spread.  Hope you are doing okay.

    Lee

  • Hi Lee,

    That is awful - it’s bad enough receiving that news face to face with a surgeon and a cancer nurse to answer your questions. Over the phone is a blatant breach of best practice - perhaps understandable at the height of Covid.

    You’d be in your rights to make a formal complain in writing to their Medical Director. He/she would pass it onto PALS but if you send it to PALS first, the Director may never see it. . 

    I was diagnosed as incurable at stage 4 in 2013, but unexpectedly I went into remission a couple of years after chemo. No-one can explain how that happened. I keep expecting it to come back but so far it hasn’t.

    Good luck.
    Dave

Reply
  • Hi Lee,

    That is awful - it’s bad enough receiving that news face to face with a surgeon and a cancer nurse to answer your questions. Over the phone is a blatant breach of best practice - perhaps understandable at the height of Covid.

    You’d be in your rights to make a formal complain in writing to their Medical Director. He/she would pass it onto PALS but if you send it to PALS first, the Director may never see it. . 

    I was diagnosed as incurable at stage 4 in 2013, but unexpectedly I went into remission a couple of years after chemo. No-one can explain how that happened. I keep expecting it to come back but so far it hasn’t.

    Good luck.
    Dave

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