Constant bleeding and have been fast tracked to gynaecologist with urgent suspected cancer referral. Worried about ovarian cancer

Hi, looking at previous post's here, they are quite old so maybe i wont get advice or opinion here.

I was hoping if i list my symptoms and what my GP has said so far that maybe someone could reassure me not to think the worst here.

I am 42years old with 3 children and i have had my tubes tied for 18 years.my periods have always been like clock work, couple of years ago they started being shorter amount of days but heavier....which im sure is ageing process. For a year or so after sex with my partner i would notice abit of bleeding....barely worth noticing but i am aware i should of gone for advice then.

I am absolutely petrified of doctors, surgerys, hospitals. I cant explain why but i dont go for help unless ive been hit by a car lol its bad i know but i just plod on through 

Anyway, 5 months ago i started having 2 periods a month then 3 months ago i started with this discharge very watery and contains blood and clots.. this is every day! So i literally bleed every day all day , the pain in my uterus and back has got unbareable ( i take a ridiculous amount of pain relief to function) this has become unliveable and i am exhausted 24/7 so i finally gave in...

I went to the doctors and she gave me an examination, said my cervix did not look normal and the bleeding and discharge is excessive that i have erosion which from what i read is normal if ive understood my doctors comment correcty?? The visit to the surgery and examination was all quite traumatic and i felt sorry for the doctor as she tried to deal with me in floods of tears and having a panic attack mid examination....ive never had a panic attack in my life! Basically i couldnt get a breath in so after the speculum she just stopped the examination.  She said she was worried and that shes fast tracking me to the gynaecologist at the hospital for "urgent suspected cancer" this was 2 days ago and my downloaded referral letter says if they dont phone by the 26th march (today) then im to call them.she has also booked me in for a ultrasound.

Its 3:50am and as usual for me lately im sat on the side of the bed in agony....writing this in hope that my story so far is similar to someone else and they can tell me that it was not ovarian cancer and it was some other thing that is easily treated 

  • Not great if I’m honest. She could definitely see something, she said she’s fairly sure/certain it’s looking like CC but without the biopsy she wouldn’t like to say. She’s sent it off urgent.  I think there were 4 nurses in too, they were all lovely but I between the breaks of silence I could see them all looking at each other quick glancing. They didn’t show me the screen and I was bleeding heavily in the end. It took 3 different attempts I think from burning and applying something to stop the bleeding from the biopsies. After I got myself together from near fainting because of the blood she said she needed to have a chat with me, which is where she told me the above about what she thought. She also said I needed to have my blood taken for an mri she was scheduling to see (if it is cancer where/if it’s spread) but because of the distance she asked if it was ok to call instead of waiting a journey and time and could get the mri underway. 

    it seemed very much underway if you get me. I’m in agony as we speak, I don’t want to put anyone else off but even though the locally anesthetized me I felt everything and I’m feeling it now the anesthetic has well worn off. 

    so now I await a phone call. I was expecting it but as is natural, try to stay positive. It’s just each time it’s reaffirming what’s clearly evident. 

    Thank you for checking in. How are you doing? What’s your next steps? Xx

  • I am really sorry to hear this. It sounds awful. This must be such a very difficult and stressful time for you. Do you have a partner/friend who you can speak to? Can you get to your Dr tomorrow to get some decent painkillers and maybe something to help you get some sleep/relax? 

    I know it’s a small comfort but it is good that things are moving quickly now, that you will get a diagnosis either way and a plan to move forward and get this sorted. Try and stay positive and strong and know that you can and will get through this. 

    I am thinking of you and if it helps you please keep posting - I will always read and reply xx

  • Thankfully I’m already on a miriad of medication I’m hoping I can sleep through it and wake up a bit better 

    Yes my partner came, the doctor actually asked for him to come up so he could see I was ok and so she could inform him of what’s likely. 

    You are definitely right she said herself the ball will get rolling quickly now. 

    Thank you so much I really appreciate that you’ve replied and checked up on me. I will keep you updated as soon as I know more xx 

  • Hi Rebecca 

    I am going through this exact same thing at the moment! I was told at my colposcopy on Thursday that she could see cancer. (I was referring after my smear came back 'high grade dyskaryosis with features of invasive squamous cell carcinoma') This has all happened within a week and my mind is blown! I have been going crazy asking all these same questions, started goggling and came across your post. So I had make an account to tell you you're not alone <3

  • Charlik thankyou for going to that effort to reach out to me. When i called back she she said the cancer was very visable and that she wouldn't of said either way unless she was 100% which of course she was correct. My results are back and i had to google it to understand it...

    • Appearance:
      Grade 2 cells look somewhat abnormal, but not as different as Grade 3 cells, which are considered poorly differentiated. 
    • Growth Rate:
      Grade 2 cells tend to grow and divide slightly faster than normal cells but not as rapidly as Grade 3 cells. 
    • Aggressiveness:
      Grade 2 cancers are generally considered more aggressive than Grade 1 cancers, but less aggressive than Grade 3 cancers. 
    • Spread:
      Grade 2 cancers may be more likely to spread to other parts of the body than Grade 1 cancers, but less likely than Grade 3 cancers. 
      So shes booked me for my mri but said likely it wont be till next week and then that will tell me the stage because apparently the stage is determined by size and spread.
      Problem is now the pain is so intense and it is make me get sharp pains in weird places all on one side of my body. The bleeding and clots are out of control, theres blood in my urine...alot! I get pain in my side now when i wee and sharp pains near my bum hole all the time...sorry for t.m.i i also constantly feel the need to pee but nothing.i barely eat now i feel so bloated all the time. Im crying in pain through the night, ive just really had enough xxx
  • Dear Rebecca

    I am so sorry to hear what you are going through.  The symptoms you are struggling with sound very distressing and painful. Have you been able to get some decent pain medication? Have you a date for you MRI yet? 

    Best wishes

    Tina

  • Offline in reply to Charlik

    Hu Charlik

    I am sorry to hear about your diagnosis and what you are going through. I understand the whole google thing - I spend hours on it hoping to find a different answer to the one all my symptoms point to. I have an ultrasound and biopsy next week. What are the next steps for you?

    Best wishes

    Tina