Hello my dear ,

You are certainly not alone in being confused about what's happening  , but thankfully the Multi Discipline Team meeting will be discussing your case soon . You can phone your CNS at anytime , but the surgeon will be telling you the details of your situation at an appointment shortly after .

The 2 week pathway just means you must be seen within 2 weeks of the referral .... there are other targets for the hospital,  but they're not your worry .

Make sure you have someone with you at any appointments .... and ask if you can record what's being said ..... or get a friend to take notes to look at later .You'll never be able to recall it all   especially the medical terms .

How are you with roller coaster rides ? This is going to feel like you're on one .... but young people are really good good at dealing with problems. It will all make sense eventually . I  pray that ll goes well and that the NHS looks after you as well as they have done for my hubby  .

Zillah

Hello my dear ,

You are certainly not alone in being confused about what's happening  , but thankfully the Multi Discipline Team meeting will be discussing your case soon . You can phone your CNS at anytime , but the surgeon will be telling you the details of your situation at an appointment shortly after .

The 2 week pathway just means you must be seen within 2 weeks of the referral .... there are other targets for the hospital,  but they're not your worry .

Make sure you have someone with you at any appointments .... and ask if you can record what's being said ..... or get a friend to take notes to look at later .You'll never be able to recall it all   especially the medical terms .

How are you with roller coaster rides ? This is going to feel like you're on one .... but young people are really good good at dealing with problems. It will all make sense eventually . I  pray that ll goes well and that the NHS looks after you as well as they have done for my hubby  .

Zillah

Hi my lovely,

Thank you for your reply, it means a lot. Thank you for explaining it feels like everyone is in a rush so not much is being explained. You are right about the rollercoaster currently, between hospital appointments. I hope you and your husband are doing well, take care x 

Good morning  

Just to say I'm thinking of you and hope you are doing OK. 

Good Morning,

Thank you for checking in. I am okay for now. I am waiting for the results of the MDT meeting. I hope you and your husband are doing well x

Good morning , thanks for the update  , hoping all goes well . Just a little thought ..... our hospital has a specific day of the week for MDT meets . Do you know what day your Dr's is? The secretary will be able to tell you if not . 

Have a good week and keep busy with positive things. 

Zillah 

Thank you for getting back to me. No I am not sure, I might give my CNS a call and see if she has any idea. Thank you I shall try, have a good week x

Morning, I received a letter from my consultant that was written for my GP it states a 7cm cyst that has solid and papillary features. Does anyone know what that means? x

 Thanks for posting. 

Well ,   that's puzzling isn't it ? I sometimes think that they use a secret language between medics , just to confuse us   . 

I had an 8cm "septated " cyst 10 years ago. whatever that meant.  Found by accident on CT scan for diverticulitis in July ....anyway  it was removed in early October....and biopsied  , which showed it was not cancer. 

Maybe you could put a post in the" ask the nurses " forum on here ? Or resort to a dictionary... I think papillary means little bumps a bit like fingers ..... 

Anyway  , I expect what it also means that you will very soon will be invited to an appointment when it will be explained by the experts  . 

Lovely sunny day here  hope you have the same .

Zillah 

Thanks for getting back to me, I appreciate it. Yes, truly puzzling. I am glad that your cyst was not cancerous. 

That is a good shout to put the question in the nurses chat. Thank you, the weather is better here now still a little cold, have a lovely day x

Hello,   just checking in on you . Hope you're coping OK and getting some answers now . 

Thinking of you still 

Zillah 

Hi thank you. I had my appointment yesterday. They have said its no longer a cyst but tumour and showing signs of cancer. So a lot to take in. I will be having surgery within 4-6 weeks. I am not getting key surgery either as it is so big my surgeon does not want to risk it. Still not 100% that it is cancer but that is my update. Sorry it is not a fantastic one. Take care x