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Raised CA 125 - freaking out

Secretteacher87
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Hi everyone, 

Thanks for reading this. I'm wondering if anyone has been in a similar situation... I'm 37 and recently went to the doctors because I sometimes get quite severe bloating and sometimes feel 'pressure' when I wee or sit down. Nothing too extreme, but I've become aware of these things, whereas I never used to notice anything like this. 

The doctor was really thorough and did a pelvic examination at my appointment. She said everything looked and felt normal, but referred me for a CA 125 test and pelvic and renal ultrasound to rule anything out. 

I had my blood test on Monday this week and got the results through on the NHS app yesterday. It's 46... I've got my ultrasounds booked later this morning, but I've not slept and I'm just going out of my mind with worry. I've googled myself to madness and keep reading conflicting things - some reassuring, some not so much. 

I don't want to leave my little boy and husband prematurely and am terrified that the sonographer won't tell me anything at the scan today and I'll be caught in a 'waiting' loop. 

Has anyone else been through anything similar? 

Thanks again for reading xx

Parents
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    How did you get on? I’ve got CA125 39 and my ultrasound found thickening of endometrium and 2cm irregular ovarian mass. I had an MRI on Sunday and waiting results. It’s just horrible isn’t it. The worry.

  • Offline in reply to D3mur3

    Hello, thanks so much for replying, it is horrible... I had my ultrasound and the sonographer wouldn't say too much. She did promise me that there was nothing that caused her alarm - I was so upset and begged her to tell me if there was anything sinister looking. I've had a call since from my GP to say I'm to go for an appointment on March 7th to discuss the results and that there's nothing sinister and I shouldn't worry. I can see on my NHS app that they've written there are signs of endometriosis on my left ovary and some thickening of the womb. Since then, I've had dull aches that come and go on my left side... Just confused and worried by it all. Have you heard anything back yet? 

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  • Offline in reply to D3mur3

    Hello, thanks so much for replying, it is horrible... I had my ultrasound and the sonographer wouldn't say too much. She did promise me that there was nothing that caused her alarm - I was so upset and begged her to tell me if there was anything sinister looking. I've had a call since from my GP to say I'm to go for an appointment on March 7th to discuss the results and that there's nothing sinister and I shouldn't worry. I can see on my NHS app that they've written there are signs of endometriosis on my left ovary and some thickening of the womb. Since then, I've had dull aches that come and go on my left side... Just confused and worried by it all. Have you heard anything back yet? 

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