Bowel/colon/stomach(gynae?) investigations

Hey everyone

just reaching out to others that have been told to await urgent triage phone calls to book in asap tests & further investigations. 
I can’t help but worry yet also be very relieved as FINALLY things are being taken seriously & could find all interconnect

hope to hear from others going through or who have been through a similar process.

thanks

C x

Parents
  • I'm going through the same thing. I have drastic weight loss. Everyone is shocked at how much weight I've loss. I'm very scared. 

  • Me too as people been saying I’m anorexic when usually love food & have always had to watch my weight! Other symptoms I hadn’t put together until recently plus already visited 2 different gps both saying nothing to worry about when actually now, it could be! Also get days sick as a pig where eating or trying to then makes it worse… anti sickness tablets are helpful but not all the time. 
    dodnt get my call today so will be chasing them promptly tomorrow as that’s the cut off day for being given test dates/types… so we shall see if I learn any more or not. 
    hope you also hear soon so can start to get answers xx

Reply
  • Me too as people been saying I’m anorexic when usually love food & have always had to watch my weight! Other symptoms I hadn’t put together until recently plus already visited 2 different gps both saying nothing to worry about when actually now, it could be! Also get days sick as a pig where eating or trying to then makes it worse… anti sickness tablets are helpful but not all the time. 
    dodnt get my call today so will be chasing them promptly tomorrow as that’s the cut off day for being given test dates/types… so we shall see if I learn any more or not. 
    hope you also hear soon so can start to get answers xx

Children
  • Having colonoscopy and endoscopy on Thursday. Having CT scan on Monday. So by Thursday I'll know if I have cancer. Losing all this weight so rapidly has just made me think I have end stage cancer. I'm utterly devastated! I hope you get some answers soon. 

  • I take it they rang you and started the ball rolling that's good ,they might even tell you something on Monday after the scan if they see anything really nasty ,I know you're not looking forward to the tests but in a way it will be a bit of a relief because you know you're being seen at last ,I hope it goes well for you on Monday ,try to stay calm .

  • Wow that has happened fast- which is good news considering nhs resources as so stretched. A relief they are more on the case at least with early diagnosis! When did you hear from whoever first? I got called to book a triage call tomorrow 11am deciding what lies ahead & how quickly… it was expressed that they are incredibly OVER subscribed (unsurprisingly) so another night wondering what lies ahead & how quickly!

    you must feel some relief that at least that they are being thorough… will you get same day results alongside then waiting on any biopsies that are taken from the investigations? 
    to add to my fun & games, today the gynae issues are back with vengeance previous explanations being endometriosis clinic again & likely perimenopause as of last year hence affected ferritin levels in bloods- or are they from this instead… who knows I certainly am fedup with falling apart unsure where the main source of problems have come from. Answers even when we don’t like them… are at least answers.

    then we can process that & find ways to carry on living life! 

    are we allowed to communicate outside of here? I’m pretty bad at finding the threads or keeping up to date with journeys others are also happy sharing their experiences etc 

    would love to hear how you find the investigations consultants & results process- that’s what we dread most usually lol.

    c Xx 

  • Hi jenny

    how did you find ways to stay calm switch your brain off of thinking the “what ifs” as that’s my biggest issue the waiting to find out if anything shows up- no cancer obviously great! However then that surely means further explorations ahead too? 
    im such a worrier which doesn’t help matters & way overthink which is often why im seen as negative rather than positive overall… and yet i see a glass half empty because it can be filled back up rather than it’s nearly empty end of…. Suppose that is still rather negative though, isn’t it  

    tomorrow at 11 I’ll hear what tests where & how quickly so fingers crossed to moving forward finding the answers & getting back on track again

    C xx

  • The thing that kept me calm is the fact I had many blood tests done before I did the fit test and they were all within range so when the fit test came back abnormal  the doubts started to creep in ,but I couldn't change the result so just had to keep remembering blood tests were satisfactory and I thought what will be will be and the fact I'd been there before , I hope tomorrow goes smoothly for you and that your appointments are soon and as you say finding answers and getting back on track instead of in limbo .