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Haemangioma on liver MRI tomorrow to rule out Mets

Katycheek
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I have Mucinous adenocarcinoma of GI origin  this has come from my ovary.

Ive had CRS ( CC0 ) and HIPEC  at a Peritoneal Malignancy Unit  and have had LAR of rectum, removal of omentum and peritoneum, ovaries tubes, uterus appendix, tumour.

About to start chemo on 28/01 6 cycles of Carboplatin & Pacitaxol. 

 Had a CT scan and 3 spots showed up on liver.

These were on my first CT scan and attributed to being haemangiomas.

My consultant radiologist has asked for MRI to determine if they are haemangiomas. I think she is concerned that they may be metastases from my ovarian cancer.

I am worried sick.

I was told no cancer was found in my upper abdomen area and my liver and spleen where clear as was my colon.

There were no spread to any lymph nodes in my abdomen.

My PCI was 13

I've just had all my Tumour markers done again as a baseline before chemo. They are all normal. They include CA 125, CEA, CA19.

COULD LIVER METS BE MISDISGNOSED AS HAEMANGIOMAS?

DOES THIS EVER HAPPEN?

  • Hello Katycheek

    I'm sorry to hear about your diagnosis and all that you've been through. It's understandable that you're feeling anxious about the request for the MRI that you had earlier this week and what these areas of concern on your liver might actually be. Hopefully you won't have to wait too long for the results and whatever the news, the team are able to offer you some reassurance about the next steps in your treatment. 

    We know that for many people this period of waiting and uncertainty can be difficult. If it would help to talk with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to offer any advice, information and support they can. 

    I hope that you have some positive news soon. Keep in touch Katy and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline in reply to Moderator Jenn

    The MRI showed metastases in my liver.

    I am fairly devastated. Even my Radiologist friend was crying when she told me.

    This puts me at grade 4C now which.means I am incurable and the rate of spread since surgery is just 4 months. I am very concerned that this is the beginning of the end.

  • in reply to Katycheek

    Hello Katycheek

    I'm so very sorry to hear that you were given the news that there are metastases in  your liver. Hearing the news that the cancer has spread and is incurable is such difficult news to receive and I hope that you're being well supported by loved ones as you begin to come to terms with this. 

    Do you know what the plan is now? Will you have an appointment with the Oncologist before your treatment is due to start at the end of this month? Hopefully you will have a good response to whatever treatment they offer you. 

    If it would help to talk with one of our nurses don't be afraid to give them a call next week. You can always call your specialist cancer nurse as well if you feel that you have questions or need to talk things through with them. 

    I know that this is a very difficult time for you at the moment. Try to take each day as it comes and don't look too far ahead into the future as that will leave you feeling more worried. And certainly please don't use the internet to try to find information as that will most definitely leave you more anxious. 

    Keep in touch with the Cancer Chat community if it helps to have a safe space to put down in writing how you're feeling. We're here for you. 

    Sending my best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline in reply to Moderator Jenn

    It's not yet known if these mets were there before my surgery as haemangiomas were reported on my first CT scan, but that could be a misdiagnosis.

    My Radiologist friend has requested the original CT scan to double check this.

    There won't be a plan until after the MDT next Wednesday. I expect to hear Thursday

    I do feel doomed now. My mother died of metastatic liver cancer which was from colon cancer.

    My sister had colon cancer at 32 but has been NED 40 years with no chemo!

    My father died of pancreatic cancer at 80.

    Healthy all his life until then.

    I will have to see what they offer.

    Dread another op or bowel obstruction or mets to bones or brain.

    Will be considering going to Dignitas.

    It's strange because I currently feel so well.

    It's hard to imagine getting deathly ill and weak again and being in terrible pain as my mother and father were.

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