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adjuvant radiotherapy after hysterectomy

Kayem66
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I was diagnosed back in July with Stage 1 Grade II endometrial adenocarcinoma and have recovered well

after a total hysterectomy and bilateral salpingo-oopherectomy on Sept 25th.  Due to lympho-vascular space

invasion I have been recommended to have adjuvant radiotherapy for 25 days due to start in 2 weeks.  I have

still not had my POLE results from the original biopsy four months ago, despite much chasing, which could

mean I do not need this treatment.  Is there anyone who has had this who can tell me of their experience as

the possible side effects almost put me off wanting to have it.

Parents
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    I had a hysterectomy 4 weeks ago and had an appointment this week at the cancer hospital. I had stage 1a grade 1 endometrial cancer and they have arranged for 5 weeks of radiotherapy. My planning appointment is today. I don’t have the Pole gene and even though it was caught early I am not looking forward to the treatment but if it helps to stop any reoccurrence I will grin and bear it. If they have recommended radiotherapy it might be that you don’t have the Pole gene, can you ask them to clarify that is the case?

Reply
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    I had a hysterectomy 4 weeks ago and had an appointment this week at the cancer hospital. I had stage 1a grade 1 endometrial cancer and they have arranged for 5 weeks of radiotherapy. My planning appointment is today. I don’t have the Pole gene and even though it was caught early I am not looking forward to the treatment but if it helps to stop any reoccurrence I will grin and bear it. If they have recommended radiotherapy it might be that you don’t have the Pole gene, can you ask them to clarify that is the case?

Children
  • Offline in reply to Guntew118

    I'm going to go ahead even without the POLE gene result (which seems to have gone astray, but the chances I will have it are slim) 

    I have heard varying second hand accounts of the treatment's side effects but as everyone responds differently will just have to take

    my chances. Like you I'm not looking forward to it.  Good luck with your radiotherapy.

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