High grade severe Dyskaryosis and HPV

Hi 

please, is there anyone else who’s had (High grade severe Dyskaryosis and HPV) ? What’s turned out to not be cancer? 

I am so so worried, just had my letter back confirming I have both High grade severe Dyskaryosis and HPV. I have got to wait now for a Colposcopy but I am in absolute bits. 

I am on my own with a little girl whom needs me and I’m scared to death it’s Cancer. Also, not sleeping and haven’t slept in 2 weeks due to my beautiful Nan passing away on the 10th of December and now this, I can’t take much more and the worry is making me ill. 

so my question really is, has anyone been diagnosed with both High grade severe Dyskaryosis and HPV and it’s not been cancer please? 

thank you to you all for all the help you give on this page! 

Parents
  • I’m in exactly the same position and am interested how everyone has got on. My smear result was high grade severe dyskaryosis to cells and cervix as well as a HPV positive result. 
    I’ve been having bleeding in between my periods, pain in my lowed abdomen, pain in my lower back and unusual discharge for months. Went to the GP, have had blood tests which discovered a raised CA125, then an ultrasound to check my ovaries which found a small fibroid but nothing else. 

    Now I’ve had my smear test results back and had this. I’m so worried. 

    I’ve been told my colposcopy appointment will be twenty minutes - and it included a leaflet about having a LLETZ. I’m really worried. 

  • Hi, I'm sorry that you're feeling worried. I was in exactly your position a couple of months ago. I had the same smear result but I didn't have any symptoms or irregularities in bleeding etc. I had a colopscopy and a LLETZ procedure, which is painless as they use local anaesthetic to numb your cervix so please don't worry. Your consultant will look at your cervix to see the cell changes. Depending on what they see, they will offer to do the LLETZ then and there. It's so quick to remove the cells. They will then send the cells off for testing. My consultant said she could see a small area of high change. I don't know whether they can see tumours during a colposcopy but it's possible. It took about 5 weeks for my results to come back which confirmed the cell changes my smear test had picked up but no malignancy was found. 

    Please be aware that the smear test results do not mean you have cancer. The test shows that you've had cell changes which need treatment to prevent them from becoming cancer. 

    The fact you've had a clear ultrasound of your ovaries is a good sign. I believe fibroids can also cause bleeding/abdominal pain etc. 

    I know how awful is it being in a state of worry but please try not to. Keep us posted with how you get on. I'm sure it will be fine xx

  • Hi I had high risk hpv type 16 and high grade ( severe) diskaryosis I went for a colposcopy. They were going to do a lletz procedure but was told I needed to have it done under a ga as too large to do in clinic so I feel your worry as you do but the cells are just changing they are not cancer yet so have your lletz done and try not to worry I’m sure it will be ok I’m 58 and had a smear for the first time in 25 years like the other commenters I had a bad experience but at least we all caught it now when something can be done so stay positive have great days and try not to worry let us all know how things go and remember all worrying does is make you tired it doesn’t change anything or make it quicker so what’s the point lol xx 

Reply
  • Hi I had high risk hpv type 16 and high grade ( severe) diskaryosis I went for a colposcopy. They were going to do a lletz procedure but was told I needed to have it done under a ga as too large to do in clinic so I feel your worry as you do but the cells are just changing they are not cancer yet so have your lletz done and try not to worry I’m sure it will be ok I’m 58 and had a smear for the first time in 25 years like the other commenters I had a bad experience but at least we all caught it now when something can be done so stay positive have great days and try not to worry let us all know how things go and remember all worrying does is make you tired it doesn’t change anything or make it quicker so what’s the point lol xx 

Children