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High grade severe Dyskaryosis and HPV

Kayles
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Hi 

please, is there anyone else who’s had (High grade severe Dyskaryosis and HPV) ? What’s turned out to not be cancer? 

I am so so worried, just had my letter back confirming I have both High grade severe Dyskaryosis and HPV. I have got to wait now for a Colposcopy but I am in absolute bits. 

I am on my own with a little girl whom needs me and I’m scared to death it’s Cancer. Also, not sleeping and haven’t slept in 2 weeks due to my beautiful Nan passing away on the 10th of December and now this, I can’t take much more and the worry is making me ill. 

so my question really is, has anyone been diagnosed with both High grade severe Dyskaryosis and HPV and it’s not been cancer please? 

thank you to you all for all the help you give on this page! 

  • Hi Kayles

    Please try not to worry, even High Grade Dyskaryosis is usually classed as abnormal cells but NOT cancer itself.  I was diagnosed in my late 20's with having Cin3 abnormal cells (now known as High Grade), I presume that I also had HPV  but that was before they started testing for it.  I had a colposcopy and had a large area of cervix removed via loop diatherm procedure.  That was nearly 30 years ago now and I have never had another abnormal smear, following my procedure.  So rest assured that the screening process really does work at nipping things in the bud, before it turns into cancer.

    What you can do whilst waiting for your appointment, is to try boosting your immune system to get rid of the HPV.  Research what you can do to eat healthily, reduce alcohol if you drink and try to increase exercise.  Not only will it help your immune system, it will also help your mental health whilst waiting.

    Good luck and I hope you get good results.

    Annie

  • Offline in reply to annie123

    Hi Annie, 

    Thank you so very much, and thank you for your quick response, 

    I’ve been in an absolute state. This has definitely helped my nerve's. I can’t thank you enough! 

    preferably, I would want a Hysterectomy have it all removed, if that can be done. But thank you again this has helped more than you know. 

  • in reply to Kayles

    Do you have a date yet for when your colposcopy appointment will be?

    Have you had regular smear tests up to this one?  Fingers crossed, it will turn out to be nothing or easily sorted out by removing the abnormal cells if necessary.  Yes, I always swore to myself that if the abnormal cells ever came back, I would want a hysterectomy and just get rid of the risk.  Luckily so far at the age of 57, all is still ok.

    These types of things are always worrying and no matter how much people say 'dont worry', we still do, unfortunately our minds always tend to think of the worst possible scenario.

    I went through testing for cancer this year (liver cancer), I had 2 months of scans and tests and then surgery to remove the tumour (luckily it turned out to be benign after it was tested).  The only way that I got through it was to tell myself that until someone told me otherwise, I would believe that it was benign.  My mother used to tell me that there was no point worrying, until you knew for sure that there was something to worry about!  

    Try to get some rest and dont let your mind run away with itself.

  • Offline

    Hi, 

    I had cin3, so the same as yourself and hpv, I had lletz treatment around 5 years ago but my body hasn't managed to rid itself of hpv so I have regular colposcopies and have more abnormal cells on my cervix which up til now has been a wait and see approach. With the hysterectomy part, I also asked about this and was told you still have to go for smears etc as they check the upper vagina aswell as the cervix. Try not to worry too much, I know it's hard

    Good luck with your results and any treatment you may need

    Chelsea

  • Offline

    Hi there, I am in a similar boat to you :( I am 42 and was an idiot and didn't have a smear test for years and years (decades)....I had a bad experience once where the test caused me to faint and it became a bit of a phobia. But on 2nd Jan I said to myself go get it done. This morning I got a call from the hospital to say I am being booked in for a colposcopy and LLTEZ which is taking place on Tuesday. High risk HPV and high grade (moderate) dyskaryosis had been detected in my results. I am absolutely petrified. I have a little girl with severe autism who needs me. I keep blaming myself for not getting screened regularly, and have been saying it will be my own fault if it's the worst news. 

    I hope things have improved for you now?! I too am beside myself with worry :( xx

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