Hi tango lovely to hear from you,  I  think James had an appt yesterday... good luck with the ♀️. Wednesday often done pre- op to check lung capacity along with iron infusion when bloods are on tge low side.

I call the secretary to my Colorectal consultant every couple of weeks  [ her advice]  to check if results are back from pathology...told on Wednesday they are back and waiting to be seen by consultant.. next step he reads them, dictates a letter to me and then I will finally know.. hopefully within the next couple of weeks  been a long 15 months...

Take care, stay strong and positive,  sending love to you and James4000 xx

Eastendgirl. Not looking forward to the fitness thing as I do have asthma so I’m not as fitt as I used to be   I told the consultant I don’t go out much if at all but he wants me to go out for a walk so I promised him I would at the weekend  not too far as I’m always needing the toilet   Hope it’s not too long before you see your consultant and things move a little faster for you  my thoughts are constantly with you my friend  is there any way we could swap phone numbers as I would really love to talk with you I feel really connected with you your a real lovely down to earth person. Please except my apologies  if I’m been too much regarding phone num  as I do understand  xx

Tango...you were reading my mind, been thinking the same thing for a while now.. not sure how we go about it without posting it here for everyone to see  have to  about it some more.. no apologies tango xx

Morning all

Good to hear from you as always.

I think there is a way to "friend request" other people on here so maybe any of us could use that function to then message one person directly with contact details- I'm not sure what the protocol is on here.

 Eastendgirl  I hope you get a clinic soon. If they're saying the results are back, I'd think you will.

 tangoPotter Hope the appointment goes well. I've been told being as fit as we can be does help. But I'd think it's all relative and not the only factor.

I had a clinic with a surgeon yesterday and whilst it's all still very daunting, he was great, very personable, knowledgeable and most importantly reassuring. If course the treatments and surgery have some risks and some unknowns, but he was very confident about the outlook for me, which is a great relief. He also told me to try eating other things again and that he isn't particularly concerned, in my case, about a blockage.

I have a clinic with the oncologist on Monday, when she will detail a plan for chemo and radio. I'm obviously stressed about that, but I know many people on this forum have gone through it, can advise and reassure.

I also have a 2nd opinion coming with a clinic next Thursday at a very well regarded hospital. I'm very fortunate to have access to that. My local NHS hospital has also been great.

Feeling a little better in my mind. Up and down days, but better than I've been in the past week, since a good meeting with the surgeon.

James4000 hi James glad things went ok for you  I know what you mean the whole process is daunting  but we know all this is the way forward on the road to recovery  my consultant also said is to eat more things now as he assured me I won’t get impacted  he said there is enough room to have BM so I’m trying to eat a little better  my iron levels are border line so I will be having iron infusion it doesn’t take long to have one then maybe I might feel a little better and not as pale   I’m so pleased James your feeling a lot better than a few days ago  my consultant asked me about my mental health how I was handling it all  I just said I’m finding it hard but I try and think positive     It we know it’s hard  all the best James. Xx

Hi James glad to hear your appt went well,  having a positive connection with those dealing with our health issues has such an impact,  I've always thought..especially on our mental wellbeing..

Be thinking of you next week,  hope the appts are not too overwhelming xx

Hiya james

sorry I’ve not been on here much yet really should’ve been abit more so to keep distracted & hopefully encounter other lovely people like yourself, eastendgirl & tango potter….

im *** at staying focused on any 1 thing currently, however managing to get up showered or bathed & start slowly day by day working through a silly number of house jobs around clearing/cleaning researching & trying to follow advice to improve symptoms!!!

struggling with waiting on the histology report am I allowed to share a secretary reply this Tuesday a week on- which took me 2 plus days to even locate as said ck Santana secretary JUST changed plu actually 2 oncology specialists mine is colon/gastrointestinal the other with different forename is lung cancer… abit different when it comes to biopsy results surely?!

Wish we could pm as here I find impossible to find follow & reply at the right points 

take care all of you & advice again Monday if no reply 

results supposedly are with the colorectal surgeons lab ready to write reports- but nothing plus actually

please guys

yell me it’s silly worrying those only 2 biopsy samples… we’re rushed through urgently for screening for reports within 1-2wrrks?

am I wrong?

Thank you all for being such lovely kind compassionate people- a shame we hadn’t met (or virtually met) 

maybe 1 day?

C Xx 

evening James

evening to tangopotter & eastendgirl too

sorry for hiding my head in the sand- quite literally that’s what I am doing without even always meaning to….

My social anxiety from realising it’s been a month of very few outings- it’s at an all time high again yet refuse for medics to further dope me using other drugs that supposedly help but then a tuay make you more zombie so actually unsafe to go out alone or be able to think straight… catch 22.

maybe some of you have it instead with sleep & when struggling, needing medics help to attempt a more ntatural sleep patterns? Also addictive so temporary as a fix I know- compared to more holistic approaches at least

soooo I am STILL awaiting only 2 biopsy results.

am I allowed to share more details from the initial basic reports for your own perspectives? Same with the eventual email back this week after FINALLY tracking down the correct surgeons secretary- not helped by 2 with the same surname both consultants overlooking endoscopy results & treatments… didn’t need that to boot.

oh & on top of that… another person with my exact name & a similar DOB is at the same gp surgery & we have now been muddled up at least twice for various procedures investigations reports etc!!!

pkus before our gp had to take medical leave- he admitted he learnt his wives bloods lie when infection is it isn’t within her body- he is adamant or was anyway, that mum myself & younger sister, also suffer from the same.

ever heard of this before or where I can ask for further info/investigations? truly unsure I have cancer more likely a blockage from IBD or similar that can lead to cancer/other health issues.

unsure which is best… answers end of! Then once clear… I can finally get in the hip replacement waiting list! HOORAH! 

would love to keep in touch, brain fog & eyesight/headaches seem to worsen day to day despite plenty of water 

C Xx

Staying well hydrated is vital for us all.. I don't take any meds due to a rare allergy..

I have been shielding since Oct 2019, only outings are essential medical appts.. as for biopsy results..the waiting list for results is 20 weeks where I live, so like you I'm still waiting.. nothing I can do to change the situation...my colonoscopy was Dec 2024. Sounds like the G.P practice needs more attention for patients notes..it's not unusual to have more than one person with the same name, which is why thorough checks should be done in regards to DOB, address, which is why everyone has a UNIQUE number in the UK system..for NHS and other organisations...