I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

The cancer nurse offered to call me later today with an update post- meeting.

I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.

James4000 hi James I wish you all the luck in the world  I was thinking maybe this is the hardest waiting to hear your results and what can be done for you as I know it will be for me. I’m still waiting for a scan but it’s still in the 2 eeek pathway  please keep us informed  lots of love  x

TangoPotter... you may have seen my post to James...

I realise everyone is different ..for me being prepared is vital which is why I felt it was important to share with those awaiting results/news/ updates... watching my cousin waiting for a call,  then being told her case hadn't been heard/reviewed was ...

I'm keeping everything crossed for everyone waiting...bcoz the waiting has such an impact on our mental wellbeing  xx

Eastendgirl yes I’ve just seen your post to James. Thank you for the up date  I guess we have to be prepared for any thing  thank you for sharing  xx

TangoPotter...I'm staying positive and hoping she was one of the unlucky ones x

Thank you both for your kind words and support. This forum has been a blessing.

I heard from the nurse, after the MDT meeting. Relatively good news, which is such a relief. A long way to go, but:

- no signs of spread to any other organs on the MRI and CT Scans

- tumour is the most common kind, I think adenocarcinoma.

- they are confident still of treatment and cure

- a couple of adjacent lymph nodes look like they might be slightly bigger, so they want to do a PET scan before deciding on chemo/radio or straight to surgery.

All quite encouraging, and they best I've felt for a month. My next worry is about whether they'll be able to remove it without the need for a bag, but I guess I'll try not to focus on that for now. My understanding is that various oncology treatments would likely reduce the size of the tumour (she even said in a very small number of patients it could remove the tumour without surgery), but surely I would need chemo/radio/immuno to reduce the size of the tumour and thereby reduce how much needs removing in surgery and reduce the likelihood of a bag.

I'm so grateful for this news. A long journey still, but the (relatively) best news for me for a while. Thank you all for your love and kindness.

Been following your story James ,I'm glad to hear its not as bad as you feared ,onwards and upwards for you ,well done for getting this first part of the waiting over ,Best Wishes ,Jenny .

Hi James4000...so pleased you got the call 

No sign of spread is great news and the PET scan will give the answers needed for making a plan...

Re the worry of having a stoma bag.. have a couple of friends who were given a temporary stoma which was able to be reversed following their treatment..

On the other hand, my 77 year old neighbour wasn't able to undergo reversal following his treatment 12 years ago... he cycles daily, walks when weather isn't suitable for the bike, travels widely and is such an amazing example of life after B.C so..positive thinking and take good care of yourself xx

James40000 so happy for you  very good news  maybe a long journey like you say but at least your on the right side of it and things are looking up  just hoping mine will be good news too  I can understand how relieved you must feel at this time  all the best to you James  x

Thank you all for your support today,.Jenny3109 and everyone else.

 Eastendgirl  thank you for sharing your friends' experiences with the bags. That sounds encouraging indeed.

 tangoPotter  and positive46 , I'm hoping and praying for good news and outcomes for you in your upcoming meetings.

Wishing you all a lovely weekend.

Thank you all for your support today,.Jenny3109 and everyone else.

 Eastendgirl  thank you for sharing your friends' experiences with the bags. That sounds encouraging indeed.

 tangoPotter  and positive46 , I'm hoping and praying for good news and outcomes for you in your upcoming meetings.

Wishing you all a lovely weekend.

James4000 hi James. I’m still waiting for a date for a scan it’s still with in the 2 week path way but I thought I might have heard some thing by now. Think my biopsies are due back on Wednesday but I have no date for a scan  hope things are going ok for you x

Hi Tango

Great minds! I was just thinking of you.

Perhaps you could call the cancer nursing team at your hospital (if they have a similar set up to mine?). Mine have been so helpful and able to update me on what's going on and give me numbers to call to check on scans etc. 

How are you feeling? The waiting is tough, isn't it? Like others have said.

Thanks for asking about me. I have a PET scan very swiftly scheduled for this Wednesday, then it'll be back to the MDT and they'll put the plan together bases on what they find on the PET. Seems like either some oncology first or straight to surgery.

James4000 the waiting is really hard. If I don’t hear about getting a scan tomorrow I will ring them as I hope they haven’t forgotten me  it’s two weeks tomorrow when I had the dreaded colonoscopy and the not so good news the biopsies should be back by Wednesday as that will be two weeks that’s if they do come back on time  but I know I need the scans before any thing can be done  thank you for the thought I was thinking about you too wondering how things are going. Are you eating better now  I’m trying to eat a little more  how’s the b m I’m still passing mucus and only small b m I guess it’s all part of it all  keep us posted  on your journey aand your progress  x

Hi Tango

Hope you get updates on scans soon. Did you call them in the end?

I'm ok with eating now, more or less, but worried if I'm being too relaxed on it and sometimes getting cramps. Had some occasional pain in lower abdomen, feels like around bladder but not sure. Maybe constipated a little. I'm checking with Dr and nurse today. Last thing any of us need is an extra complication.

Hi tangoPotter and James4000...

Been watching your updates and thinking of you both..

5 weeks since my colonoscopy and biopsies taken.. told waiting time is 18-20 weeks.. I wasn't given any diagnosis at the time of the colonoscopy.. this obviously is different from the 2 week timescale you were told at the time of your procedure and diagnosis..

Take care, sending to you both x

Thank you, Eastendgirl . I'm grateful for your support and kind words.

I very much hope that no news after 5 weeks and the timescales they've told you suggest a different and less problematic finding for you.

I'm at the Dr now just for them to check there's nothing else awry. I think they're worried about me getting "blocked up" and that causing this recent discomfort. I still have BMs though, so I'm hoping that's not the case now, and that with treatment likely starting fairly soon it won't become an issue. Maybe I just ate too much or too much fibre yesterday or something.

Fingers crossed. It's been (relatively speaking) quite encouraging news recently, so I'm trying to stay positive. Could really do with things to trend in the right direction

Hi James4000...I'm keeping everything crossed for you..positive thinking is vital for us all,  not always easy but very important..

Re my timescale for results.. I agree with you..it was my G.P who  my cough and breathlessness and queried whether it was related to my asthma.. he actually said.. I think you have bowel cancer  no preamble just right out there...

Take care,  sending positive vibes

James 4000 hi James I get the same as you I have smal bm but lots of wind and some times like you I get a bit of disscomfort across the bladder area just hoping not getting blocked up but I was told if you can pass wind there isn’t a blockage  good luck James my thoughts are with you 

Only me folks...

Cooled boiled water is great for dispersing trapped wind... same remedy as used for colicky babies..