James  can I ask what is the mri like to go through I’m worried about that as well I know that will be for me maybe this week I’m dreading it. Sorry for asking. I’m such a baby I have never been through much in my life and don’t know about health things much   Do you get stomach cramps  xx

James 4000  I guess what I’m worried about is. When they did the colonoscopy  she said the growth looks like it’s been there a while. And then  I guess it’s all the in known  I’m scared about every thing  haveing op and chemo  my mind runs away with me.  You sound to be a lot stronger and you are holding it all together I think your doing so well  better than me   Lots of love  x

Hi Tango 

Maybe it's just because I'm a week ahead of you, so I've had more time to process things, and my anxiety has settled a little, so I feel less ill.

I'm scared too, and am up and down with all this. I think that's a normal reaction for all of us.

I get cramps a little, bit I've always had a sensitive stomach. I'm unclear when it's hunger, wind, anxiety etc. I find, for me, a hot water bottle  lots of mints, peppermint tea and chamomile works.

The MRI was fine, I guess. It's not fun, as it took quite a long time. But essentially you just have to lie still and do nothing for ages. I was praying and meditating, as best I could, which helped me get through it. It doesn't hurt or anything. I did find that I could physically feel the last 2 scans they did (it's it was several scans one after another, for me), and the radiologist (?) said that was normal as the last ones are a stronger frequency so you may feel them and feel a little hot. The stress was all psychological and I was a bit shaken up afterwards but the staff were very kind and supportive.

James 4000  thank you for your reply. My anxiety levels are not good but all you can do is go with the flow so to speak I’m getting really constipated never have I ever been this way just hope where the tumour is situated it doesn’t cause a blockage I’m only eating small and only what I think I can maybe eat   Still loosing weight  which is a worry I’m really trying to eat better but it’s a struggle stomach makes lots of noise  so happy you are feeling better and taking things in your stride   All I want to do is like every one on here is just to be able to get on with your life. I’m a 70 year old piano student and have another course coming up but my mind won’t let me think about any thing else. Xx

Hi tangoPotter...weight loss is to be expected when our food intake is reduced.  Same for gurgling/gastric noises.. less food means less work for the gastric juices to break down.. bit like when you feel hungry and your tummy rumbles..

You say your concerned about a blockage being caused by the tumour...this is why it's vital to keep B.M regular...impacted faeces is excruciating..

Really hoping you have been given access to a nurse by your GP/consultant or hospital..

Eastendgirl thank you for your reply  it’s really lovely to talk to you thank you. I guess I’m just getting things out of proportion not thinking straight  every thing you say makes a lot of sense  I’m just over thinking every thing every extra pain extra wind extra stomach noise   Thank you for making me feel a bit better xx

James4000 hi thank you I will have to try mints and mint tea to see if it helps. Today I’m feeling a bit achey around bottom of my back it could be how I have been laid in bed but I find every little thing that appears different with me I’m thinking is that because of the tumour I don’t know me any more  still waiting for my scans don’t know when they will be  but I’m just going to have to go with the flow of things  but every one on here is so lovely and helpful  lots of love xx

TangoPotter...hi there, may I offer a little advice please..

Have you been given an approximate date/time for the scans ?

All NHS departments are experiencing delays and longer waiting times.. so it's important to keep checking with the relevant department .. this can be appt referral/ xray department or the secretary to the Consultant assigned to your case.. going with the flow is inevitable at times but it's vital for your emotional and mental wellbeing to get as much info as possible x

Hi. I got a phone call last week not long after my colonoscopy from a hospital saying my scan will be in these two weeks she said the hospital will send an appointment date to my phone or they will ring me. That’s all I know.  Thank you for your reply  xx