8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

Parents
  • Hello everyone! I have a bit of an update. So the last I had heard was that the drs came back saying that my mass was complex after my MRI and that my case required discussion with specialists in an MDM meeting. I got a call today and they are sending me for germ cell bloods which are tumour markers and the meeting is happening on Friday. Has anyone gone through this? Is this normal/routine? As you can imagine, I'm having a major wobble. Any insight would be amazing. 

  • Offline in reply to Rox36

    Hi Rox, sorry you've joined the group! So the MDT (multi disciplinary team) meeting is very normal. It's where everyone e.g. surgeons, radiologists, oncologists, nurses etc meet to discuss cases whether they're diagnosed or not. Blood tests can show things like ca-125 and other numbers for genetics which will help them work out what is going on with you.

    The waiting is so very hard but try not to get ahead of yourself too much and focus on the bits you do know. 

    It sounds like they're acting in the right way compared to normal so nothing to panic about there, it's just all very scary.

    There are lots of cyst types and you can probably see from reading the thread that not many end up being actually cancerous. Mine was, but hopefully Ive taken one for the team and you'll be fine. But if not, you're in very good hands x

Reply
  • Offline in reply to Rox36

    Hi Rox, sorry you've joined the group! So the MDT (multi disciplinary team) meeting is very normal. It's where everyone e.g. surgeons, radiologists, oncologists, nurses etc meet to discuss cases whether they're diagnosed or not. Blood tests can show things like ca-125 and other numbers for genetics which will help them work out what is going on with you.

    The waiting is so very hard but try not to get ahead of yourself too much and focus on the bits you do know. 

    It sounds like they're acting in the right way compared to normal so nothing to panic about there, it's just all very scary.

    There are lots of cyst types and you can probably see from reading the thread that not many end up being actually cancerous. Mine was, but hopefully Ive taken one for the team and you'll be fine. But if not, you're in very good hands x

Children
No Data