Hello everyone! Almost 3 weeks ago I found out I have a 9cm mass after 5 months of intermittent bleeding. I have a CA125 result of 56 and have had my MRI scan. All I know is that the mass is complex. The waiting is so so hard. In a bid to try and make sense of some of the news I've received, I have found this thread. Thank you for sharing your stories. Over 2 years ago and still such a help to people in a similar situation. 

I am shocked by how long it can take from finding the mass to actually getting it surgically removed. But also seeing it is helping to manage my expectations a little bit, that I could be waiting longer than I think. 

Any tips welcome.

Hi Rox, even though my own experience and surgery feels like a very long time ago, I remember the overwhelming anxiety and fear of the unknown very well. I wouldn't wish it on anyone and I remember feeling so scared and desperate for some sort of peace of mind, that I decided to offload my concerns on this forum. I can't tell you how much it helped. Lyns21 was one of the first people to reach out and share her own experience and I appreciated it more than she'll ever know. Other people suddenly came on board and between us, we helped each other through and let off steam. The process from beginning to end can take a very long time. I found that once I got my MRI results back, I felt a lot calmer, even though I still had a long way to go before everything was sorted out and I finally got signed off. Keep reminding yourself that you're now on the road to getting this problem dealt with. It's scary waiting for answers, but once you've got them you'll find it much easier to deal with the next few months. X

Hi Rox, even though my own experience and surgery feels like a very long time ago, I remember the overwhelming anxiety and fear of the unknown very well. I wouldn't wish it on anyone and I remember feeling so scared and desperate for some sort of peace of mind, that I decided to offload my concerns on this forum. I can't tell you how much it helped. Lyns21 was one of the first people to reach out and share her own experience and I appreciated it more than she'll ever know. Other people suddenly came on board and between us, we helped each other through and let off steam. The process from beginning to end can take a very long time. I found that once I got my MRI results back, I felt a lot calmer, even though I still had a long way to go before everything was sorted out and I finally got signed off. Keep reminding yourself that you're now on the road to getting this problem dealt with. It's scary waiting for answers, but once you've got them you'll find it much easier to deal with the next few months. X