8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Oh me again! Checking in! How are you? I see it was 3 months since we last spoke so you will have maybe or be due bloods soon. How you feeling? Has it sunk in yet that you are all clear?x

  • Hello! I was thinking about you all recently, thought I would check in and see how things are going? So glad to have said goodbye to last year! Hope you are doing great x 

  • I am still not out of the woods as they are concerned it’s one type that reoccurs within 2 years usually so will feel better when that time is up… got a scan in July so fingers crossed that’s all ok x

  • Yeah, I've got everything crossed for you. My ex' oncologist used to say that they don't use the word remission anymore because it gives people a false confidence when they say it and support starts to peel back though you're still not out of the woods yet. Not to worry you, but it is best to keep a level head and I think everyone around should spread awareness of how volatile cancers still can be. We have Hope. That's so important, but we need to stay around for the people who have these diagnoses even when the word "clear" is bandied about. Cancer too often has its own mind. Hope I'm not seeming like a doomsayer because it's not my intention. I just watched close hand how support falls back.

    My ex was abusive, but he still deserves care as a human right.

  • Oh please will you message when you have had a scan in July? I think about you all often and the journey it’s been. Keeping everything crossed for you x 

  • How are you Lyns? You keeping ok?x 

  • Yes it’s always at the back of my mind, my sister was told she was ‘cured’ and then bam! Still debating on raising the mother of all complaints as her care wasn’t the best at all! I think as she was ill when I had my surgery I parked my own problems!

  • Of course hun, this group have been amazing … I joined a rare cancers group and found it the opposite to us lot x

  • Feeling wretched today tbh. My ex isn't great. If only he hadn't been abusive I'd have taken care of him to the end. Love or no love. It's sad. I hate cancer, all the things that make us lose people prematurely. My kid's dad  

  • Aw :( you poor thing, sending hugs. This is a super confusing time for you if he isn’t well. All sorts of grieving for you coming to terms with the end of the relationship and his illness. Are your children old enough to understand his illness?x

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