8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Hello!

    Good to hear from you - hope are you doing now?

    I sought a second opinion with Imperial and had surgery in April so I'm recovering from that. But it was a great success and they removed the tumour plus told me that the chemo had continued to work to remove all cancer cells!

    So I'm waiting to heal before I restart Avastin in a month or so. I'll be on that for 6-7 cycles.

    Sadly life has been cruel and my wife has left me, found someone new and is trying to force me to sell the house. So it's all a big mess and I'm so exhausted with it.

  • Oh my goodness, I’m so sorry to read this. As if life isn’t hard enough and now having to go through this. That really is rotten and I am sending you big hugs. 
    I’ve been through divorce and was made homeless many moons ago with my son so I know what you are going through somewhat, I really hope your wife is not going to be cruel considering your health. 
    In great news though it sounds like you have been really turning a corner with your health, that all sounds wonderful. Removing the rumour and reduction of cancel cells. I’m presuming that’s not a clean bill of health as it sounds though if you are still getting cycles of avastin? Thank god for your second option! 

    I am fine thank you, I’m still not discharged from gynae as my random bleeding and spotting has continued since my surgery a year ago. Since it’s not sinister then everything is taking forever, which in some ways I am very grateful but would be good to see someone. I think I may need a further operation but I am turning 40 in the next few months so I have a big trip booked so hoping it doesn’t come around then! 

  • I'm sorry to read this. Glad your health seems to be rounding a corner though x

  • She isn't being particularly kind put it that way!

    Thankfully I've been able to stay with my parents a bit whilst recovering but they live a four hour drive away.

    Because my cancer was high risk I continue with avastin as maintenance for the full year of cycles so I'll be on it up until October. At the moment I'm NED so here's hoping it stays that way

    Urgh it's so frustrating how slow things get in the NHS once you're out of the immediate emergency timelines. I hope they see you soon and you get some answers x

  • I am still not out of the woods as they are concerned it’s one type that reoccurs within 2 years usually so will feel better when that time is up… got a scan in July so fingers crossed that’s all ok x

  • Yeah, I've got everything crossed for you. My ex' oncologist used to say that they don't use the word remission anymore because it gives people a false confidence when they say it and support starts to peel back though you're still not out of the woods yet. Not to worry you, but it is best to keep a level head and I think everyone around should spread awareness of how volatile cancers still can be. We have Hope. That's so important, but we need to stay around for the people who have these diagnoses even when the word "clear" is bandied about. Cancer too often has its own mind. Hope I'm not seeming like a doomsayer because it's not my intention. I just watched close hand how support falls back.

    My ex was abusive, but he still deserves care as a human right.

  • I'm sorry she's being rough with you. I just hope with everything in my being your cancer journey is coming to the best possible conclusion at the very least. I am surprised by how many relationships breakdown through cancer buy it's a fraught time and we're not all up to it. I hope for you to have more secure times ahead in health, wealth and love x