8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

Parents
  • Evening, not sure if this thread is still active but it has been a great thread and i wanted to share my story as i am currently playing the waiting game. 

    I have a known Ovarian cyst which is surrounded by adhesions and bowel and has gone from 6.5cm to 14.5cm in a matter of 6 weeks and an urgent CT in A&E showed it was complex even though it has been simple for the past 3.5 years. It was 17cm in March 2025 but it got drained in April as plays havoc with my bowels and bladder.

    I had an urgent MRI last week and was discussed in MDT Friday and have been given f/u appt on 16th Jan. I am already under the gynae oncology team as even though my cyst was simple ive had a previous cancer of the placenta 13 years ago so they took my case.

    I am freaking out - even if benign i may need surgery as have had to have catheters inserted 3 times to drain my bladder as the rapid growth has squashed my bladder.

  • Hi chhaya99  ,

    Sorry you've not had a reply yet. The thread is still active, but I think everyone is probably still busy after Christmas and new year.

    Your case sounds complicated, but it still could be benign and I'm hoping that it is. Wow, that must have been hugely traumatic to have placental cancer. I just want to give you a hug   and hold your hand whilst you wait on results.

    It sounds really uncomfortable too.

    Keep us up to date and stay in touch,

    The ladies here are wonderful support.

    Good luck,

    Lyns21

Reply
  • Hi chhaya99  ,

    Sorry you've not had a reply yet. The thread is still active, but I think everyone is probably still busy after Christmas and new year.

    Your case sounds complicated, but it still could be benign and I'm hoping that it is. Wow, that must have been hugely traumatic to have placental cancer. I just want to give you a hug   and hold your hand whilst you wait on results.

    It sounds really uncomfortable too.

    Keep us up to date and stay in touch,

    The ladies here are wonderful support.

    Good luck,

    Lyns21

Children