Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

So sorry for your loss I am glad she went peacefully you do have a lot to contend with at the moment with your chemo as well. lots of love 

Yeah it is. I had surgery earlier in the year twice where they removed a benign lump but scans in June showed the original cystic lesion was still present. 

I've had cervical cancer in 2013 so they thought it was a recurrence of that as ca125 was low and it wasn't growing.

She told me I was odd and my cancer wasn't behaving as expected which is a good thing I think.

*** cancer and the horse it rode in on!!

Thank you xx just an overall *** year! X

She did, she was frightened tbh but slipped away as she wanted, it’s the rest of us that suffer now xx

I'm so sorry to hear this news, but glad to hear that she passed peacefully in the way she wanted. Good to hear that your treatment hasn't been too bad so far. I have no doubt you'll have this thing sorted sooner rather than later. Look after yourself and keep us posted. X

Will do thanks hun … fingers crossed xx

Sorry to hear this. It must have been a shock after all this time to get this diagnosis. Good luck with your treatment. Look after yourself and keep us updated X

I’m so sad to come on here and see your sister passed away. So young. Glad she got to be at home. Sending hugs to you and yours :( 

are you managing to stay strong and well with your own treatment?x 

Jeh oh my goodness I’m very sorry to read you have cancer again. After all your surgery etc and they removed further benign lumps and this one was still there! It sounds like it’s trapped in a cage in your body from your description. 
what does treatment look like for you? Will you get further surgery?x 

Thanks cloudy! It's a big shock and I'm still very confused.

I'll start a combo of carbo/taxel with avastin at the end of the month then onto a maintenance drug for as long as that works.

Surgery isn't possible as they've opened me up so much but never found this lump which is frustrating.

She's said it isn't curable but it's controllable so fingers crossed I'll stay that way for a long while yet.

Mentally I'm still reeling from it and I guess I will be for a while. X

Thanks cloudy! It's a big shock and I'm still very confused.

I'll start a combo of carbo/taxel with avastin at the end of the month then onto a maintenance drug for as long as that works.

Surgery isn't possible as they've opened me up so much but never found this lump which is frustrating.

She's said it isn't curable but it's controllable so fingers crossed I'll stay that way for a long while yet.

Mentally I'm still reeling from it and I guess I will be for a while. X

I bet, you must just be all over the place mentally. That just sounds so confusing, even I have so many questions, I can’t imagine what you feel like. 
it sounds like it’s been slow growing even though they have noted it as 3c so I’m very glad that it’s going to be controlled. What a shock for you. I hope you are doing nice things and have things to look forward to at a time like this. Be kind to yourself. Sending lots of hugs and well wishes, be thinking of you x 

Thank you. Yeah we're trying to book a v last minute holiday next week if we can get some dog care.

I just don't understand why they didn't do the simple biopsy back in January. It feels like even though it was cyst like and next to an ovary they just considered cervical cancer recurrence. So weird but my ca125 was low and I didn't have symptoms matching this stage of ovarian cancer. I still don't!

My aunt got the same diagnosis but hers had spread throughout her pelvis, she couldn't get out of bed, she lost loads of weight etc whereas I still wouldn't know it was there otherwise. Hers was BRCA negative.

Anyways, in chemo we trust haha!

To add to the insult both my wife and I lost our jobs last month so we lost our private health insurance last week. You couldn't write it.

Oh Jeh, I hope you and your wife's storms settle now and you are in for some fairer weather. Long may your tumour surprise the doctors. I hope it cowers before chemo and I hope you both fall into better jobs and that you remain well enough to live spectacularly through any treatments you receive.

Thank you. Your words made me cry! I keep crying when people say nice things x

Tbh my CA 125 was also low, 63 I think but I don’t have high grade serous… mine is mucinous, weirdly my sisters was high grade and she was tested from BRCA when she had breast cancer as she was triple negative..you will be fine I know x

How are you doing? Did you manage to get a trip booked? Have you started your treatment yet? Thinking of you x 

Hello! We did we went to Portugal for a week and it was sunny and wonderful. Then we got food poisoning on the last day which was a bit of a downer!

I start chemo on Thursday 30th eek. Carbo/taxel and avastin.

Bit scared about it, and about everything tbh but I think I'll feel better once I've had that first treatment day done and dusted.

How are you doing?x

We went to see a Professor privately just after Joanne’s op and she was adamant that she should be on Avastin, she was doing weekly chemo and Avastin every 3 weeks, when her oncologist changed he took her off it and I do wonder if that was the reason it got worse so fast… stay on the Avastin xx

Oh lovely! I love Portugal. I am just back from Alicante last night. I had not seen my friend that lives there for 18 months as had put off travelling when they found the mass, so I feel like I’ve done something really nice. 
how did your chemo go today?x

Still here! Was an 8am start and I'm midway through taxel with carboplatin to go. Looooong *** day but glad I've not had any allergic reactions so far.

Ah being in the sun is so healing isn't it! Hope you had a great time x