8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Hello. Glad to read you are out of surgery and recovering, hoping the removal of some of the adhesions help. Crazy that the cyst had disappeared! At least they had a good look around and tidied up in there. I wonder what the biopsy was. Fingers crossed for a quick recovery for you. 
    the only advice I got was remove bandages after first 24-48 hours when having my first shower. And walk walk walk to expel the gas. 
    Week 1 of recovery felt slow and a bit rubbish, week 2 was picking up the pace, by week 3 I was back to normal. I think I’m week 5 now and it feels pretty long forgotten. Tiny little incision marks like the size of my pinky fingernail. I’ve been using silicon gel on them and they are fading fast. 
    good luck for the rest of your recovery. Keep in touch x 

  • So … quick update! I had my 5 week check up with the consultant on Monday… he is very pleased with scar and my overall health which was fabulous but… histology not so good, I am stage 1 (hopefully all contained within cyst ) but now referred to oncology… belt and braces! Feel ok in myself…. Could be a lot worse and thankfully having ‘Steve’ made it findable… had he not grown so large it could have carried on festering… that’s the positive xx

  • Just had mine … more or less 5 weeks from surgery date x

  • just giving you some virtual hugs. Stage 1 is definitely workable but I'm sorry it wasn't just a gremlin...

    Steve... At least you made yourself known.

    How is your sister doing? 

  • Sending a big hug too! Hope you are doing ok and have good support at home. Damn these ovaries! I hope you can get it treated asap x

  • Hey calyxa. Obviously, not the perfect news you were hoping for, but caught extremely early. Steve has definitely done you a favour! Sending you hugs and positive thoughts. Take it easy and let us know how you get on. XX

  • Exactly!  Would have preferred the gremlin! 

    thanks for asking… she is finally home after 11 weeks in hospital, and feeling much better … xx

  • Thanks hun! Just awaiting game now but hopefully they can sort pdq x

  • Yes I think the same.. not ideal but could have been far worse! Will keep up updated xx

  • Sorry to read this update, but at least they caught it in the early stages. Hope you're OK, sending lots of virtual love to you!! 

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