8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • I know I wished we could share pics too! I bought silicone scar reduction gel which is the new bio oil! Not allowed to apply it for first 3 weeks though. Today is day 8 of recovery so still a while to go. X

  • I'm walking pretty well. A bit slower than normal, and I still feel as though I'm not quite standing up as straight as I normally would. My belly button does feel quite tight and tender, but only to be expected. The thing that I don't like is the hard bulge above my belly button. I thought I might have had a very small hernia in that area prior to having the surgery, and I did mention it to my surgeon. She didn't seem bothered or even examine me. Now it seems more noticeable and I'm hoping it's just because the area is still bruised and swollen from being cut into. I know that the inside takes way longer to completely heal than the outside, so I'll just have to hope it settles down in the next month to 6 weeks. The GP was happy with my wounds. I think from the stuff I've read that walking for 30 to 60 minutes is what can be expected at the 2-3 weeks stage. I wouldn't rush anything, just take it at your own pace. I've been managing to sleep on my side with a pillow between my knees. I can now alternate between my back and my side without it taking 10 minutes to do the manoeuvre!! Since going through the menopause, I've been a very restless sleeper and overheat really easily, so being able to change position is quite important. I've been quite active today, but I'm feeling pretty tired now, which is a reminder that I'm still recovering. X

  • Heh lovely ladies, apologies for the late reply… had my surgery on Tuesday and it took 9 hrs! Been pretty much out of it for the last few days but I think I am now turning a corner… got quite a large would with 50-60 staples and stitches and still in hospital but they hope I can get home Monday… Steve (the lump) was quite big and will now go to be tested so fingers crossed that is good news too x

  • Hi Calyxa, lovely to have an update from you, I've been thinking of you. Take it steady as you recover, that's a lot of staples. So glad that Steve has been removed, I will keep everything crossed for you. Hope your sister is keeping as well as she can to. X

  • Thanks Kitty , much appreciated as always x thanks also for asking after my sister, she has started on a new course of chemo so all crossed x hope that you are well also x

  • I'm glad to hear from you. Been thinking about how you and your sister are doing. Offering gentle careful hugs and well wishes. I hope the chemo will be not too harsh but very effective!

  • Aww thanks Lyns, I have found the girls in this chat so helpful and supportive too. Yes fingers crossed this treatment works xx

  • So good to hear from you! I knew that after such a big surgery, it might be a while before we heard from you. You're a bloody trooper, and I'm delighted that you'll be getting home soon. Makes me feel pathetic for examining my 1cm incisions so often! Xx

  • Tbh I bet yours actually hurts more than mine! I had a bad few days but looking fwd to getting home now ! Shame I can’t send pics as I have the pics from the surgeon! Have a lovely relaxing Sunday x

  • Hello! Oh I’m so glad to I come on here this morning and see your update, are you getting home today? 9 hours you poor thing, your body will be just exhausted after that. Is your incision across like a c section or vertical? I’m just so pleased it’s now done and you are a week into recovery. The only way is up now. 
    hope your sisters new chemo works wonders too. Is she still an in patient? X 

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  • Hello! Oh I’m so glad to I come on here this morning and see your update, are you getting home today? 9 hours you poor thing, your body will be just exhausted after that. Is your incision across like a c section or vertical? I’m just so pleased it’s now done and you are a week into recovery. The only way is up now. 
    hope your sisters new chemo works wonders too. Is she still an in patient? X 

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