8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

  • Wow you have been through the mill these past years. I’m so glad you actually have a date for your surgery, I feel like that was half the battle just not knowing. Fingers crossed for you they manage to resolve it at the same time as the exploratory surgery. 
    please don’t be alarmed even if your bloods come back higher, my gynae said it was very common with a complex cyst so that’s why they didn’t retest. Keep us posted when you know and my most helpful advice is to allow yourself a worry hour once per day if you need it. One hour to Google and look it all up and then the phone goes away until the next day. It really helped focus me into still living life while I was waiting. Good luck, you aren’t alone x 

  • I feel like you should be proud of this thread, you and the other ladies on here have got me through one of the worst times in my life. I am so appreciative that you started it and kept in touch. 
    how you feeling today?x 

  • Hiya, I'm taking regular doses of paracetamol and trying to remember to get up and move. Getting in and out of bed has been a challenge, but the worst thing for me has been the shoulder tip pain. It's incredibly uncomfortable. I find having a walk round helps. Hopefully it will pass soon. I'm going to have a shower and remove the dressings this afternoon. I'm a bit nervous, but I'll just keep my eye on things and take it from there. It's the belly button I'm most worried about, because that was the one that bled for a while and is the most tender. X

  • Hi KM123. I think for me, being told my CA125 was raised and being referred for an MRI was what sent me into a panic. I'd had a miniscule amount of post menopausal bleeding, and the next minute I'm being told I've got a large complex cyst that needs further investigation! As I found out later on, that blood test is not an accurate tool on it's own for detecting ovarian cancer and that's why it's not used as a screening test. Ovarian cysts are one of the many things that can cause it to rise. I remember many years ago, I was getting persistent pain in one side of my abdomen, but I was also suffering from a lot of anxiety. I went to my GP and amongst other things, she considered doing the CA125 blood test. She decided against it because she said it can be raised for so many different reasons, it would only worsen my anxiety. Turned out all my symptoms were literally because of the anxiety and nothing else. Sounds like you are being dealt with in a very similar manner to myself and cloudy etc. Take it easy and you'll soon get the answers that you need. X

  • In hospital did they give you post operative pain relief beyond paracetamol? Because I was hardly allowed paracetamol.

  • They didn't send me home with anything! I was just given a load of advice notes on what pain relief to use and wound care. It advised that I take paracetamol every four hours and some info about how to avoid DVT!

  • I had fentanyl in the hospital when I woke up. A lot of it. And then sent home with dihydracodiene. I’m back on the paracetamol now. 

  • Ah that's good advice, thank you. I'll try it. I have terrible anxiety anyway so googling is probably the worst thing I can do all day my GP did say it can be raised and not be cancer  it can be low and still be cancer so I did wonder what the point of it was lol! I just want the pain gone now, it's been constant for nearly 2 years with all the simple cysts and now it's even worse  which might be on my head knowing there's a complex cyst there.... hope you are all doing well!  

  • That's a really lovely thing to say cloudy. I was just looking for a bit of reassurance and to see if anyone else had any experience of the same thing. If it hadn't been for you and Lyns coming forward and telling me your stories, I'd have probably just quietly disappeared and continued googling like a maniac! I will be forever grateful to both of you. I'm not too bad at the moment. I've just removed my dressings and had a shower. So far, so good. I'm amazed at how tiny the incisions are, considering what they had to get out. I'm still shuffling around like an old woman, but it's only been a day so far, so I'll try not to complain too much! How about yourself? X

  • Sames! So grateful. 
    my dressings are staying on until tomorrow, my partner and my son are away for the night so I am alone in the house for the first time and just don’t fancy taking them off alone. 
    I am still a bit shuffly too but today so much better than yesterday so I am hoping it keeps moving forward in the right direction day on day. Tbh I’m getting a little bored. I hung up the washing today and did some dishes. I’m not a very good patient. Haha x