8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • I only had a tiny bit of spotting after so far but felt more comfortable with one on and big giant pants, because the hospital bedding is so white! 
    the seamless dress around the middle is a godsend, I still have mine on! 
    yes for sure just wear your slippers, I had slider shoes, same thing really but you will be wheelchaired about anyway when leaving, so its only really to pop on to go to the bathroom/get in the car.
    kindle is a great idea too.
    I forgot to say I got dissolvable stitches and then a bit of glue over the top so I don’t need to go back or anything.
    the injections are only because I’m on the combined pill, I don’t think that’s something you will need.
    the nurse kept laughing with me because she was trying to teach me and I kept saying “1..2..3” and then don’t doing anything. It went on forever. A psychological thing, hardly felt it!
    keep in touch when you are out and ok, I’ll be thinking of you.
    what Time are you in?x  

  • Oh maybe I’m wrong. They just said I had to inject myself because I am on the pill.

  • I've got to be there at 7:15am, so hopefully I will be back home at a reasonable time. Thanks again, and to everyone who's wished me luck. X

  • I'm not losing weight as much as I was which is good as it was unsustainable though i had a good cushion to lose. My partner's doing okay health wise but I'm not in the best mood with him. I'm wondering if part of that is that now he's out of the immediate woods I feel permitted to resent some of his excesses.

    Anyway, missus, you're not long enough out of surgery to be worrying yourself about us. Go do something nice to distract you from the discomforts

  • I had bigger incision than you which might be it. Mines is about 5 inches long down from just below my belly button. No keyholes. I've only got one ovary left which they had to rescue too. I'm grateful not to have gone through menopause before 40 and it's still chugging away at 43 now.

  • I was glad to keep my second ovary albeit she did say had to shave it to get the dermoid wall off, so it’s likely not in the best shape! 
    glad you are doing a bit better and I would feel resentful if it was me too. Your feelings are valid! Thank you, away to try and eat something. Will keep in touch x 

  • Been thinking of you today. Hopefully you will be heading home soon x 

  • Hey, I'm back! I was second on the list for surgery this morning, and I think I went in before 9am. Everything went to plan and I've just got home. Sitting here reading all the paperwork. My belly feels a bit solid and I've got shoulder tip pain, but generally quite good. How about yourself? X

  • I'm so glad you are both through it and I'm hoping you will heal quickly. I assume they've taken cautionary biopsies? My partner's took about 6 weeks to come back recently so I'd assume all labs are around that currently but it might be according to area.

  • Offline in reply to Jembers Unpublished Reply

    I'm so glad you are both through it and I'm hoping you will heal quickly. I assume they've taken cautionary biopsies? My partner's took about 6 weeks to come back recently so I'd assume all labs are around that currently but it might be according to area.

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  • Offline in reply to Jembers Unpublished Reply

    I'm so glad you are both through it and I'm hoping you will heal quickly. I assume they've taken cautionary biopsies? My partner's took about 6 weeks to come back recently so I'd assume all labs are around that currently but it might be according to area.

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