8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • Trying not to think about it! My sister is still in hospital 6 weeks now… so that is occupying my mind but I think I just want to get back to being me.. and feeling better x

  • Hi Cloudy, thanks for your message. I will be thinking of you tomorrow, keep us updated, wishing you a speedy recovery and that you can be out and about with your son soon. Easier said than done but do take it easy. I'm based in England, I think the requirement for the urgency for surgery for me is a combination of symptoms and because I was diagnosed with breast cancer only two years ago. With my BC I had no symptoms, just went for my first mammogram and that was how it was picked up. I'm extremely grateful that my surgery will happen so soon as I know several of you have had to wait for such a long time and all the waiting is really difficult. When I came around from my BC surgery the main thing I remember was it was the best cup of tea I had ever drank xx

  • My sister had breast cancer 5 years ago, sailed thru that but is now stage 4 with ovarian..not secondary weirdly but we have now found out that 1 in 3 with her type of cancer (triple negative) go on to get ovarian! Thank god yours has been picked up x

  • Just wanted you to know that I'll be thinking of you tomorrow. I'm hoping you'll sail through it and be back on your feet in no time, not least because I've got to go through it myself! Good luck xx

  • Thank you. I’ll let you know how it goes. It’s 6am now, I’ve to go in at 11am but not allowed to eat after 7am so up early to have breakfast. Hopefully I’ll be back out tonight. Will keep in touch. Looking forward to this being over! x

  • Good luck, Cloudy! I hope it all goes really smoothly and you get your wish. My surgery was during COVID so I couldn't have any visitors but I was in 2 nights as my blood pressure kept dropping. Apparently I don't like anaesthesia much. Eventually they decided to send me home as I needed to be on my feet to get everything working properly again. Stoopid body.

  • Thank you. I will stay in touch. I came into hospital at 11. They expect me to go down at 2pm and be getting out by 7pm. Fingers crossed! Ready for today to be over xx

  • That's so hard on your sister and the rest of your family. I've been lucky that it was picked up. I know ovarian cancer is tough. I hope the hospital is able to support her with the support that she needs. Sorry I'm a bit slow at responding, trying to fit so much in before I'm called. X

  • Hope you are doing okay Cloudy, thinking of you x

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