8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • You deserve to jump a few places. You’ve been through so much x 

  • I have been given a gastroscopy appointment on Friday. I think they can tell me things during the procedure so hopefully know a bit better what's going on then. Hope you're coping x

  • That’s great news, at least your are moving fwd… i hope the MDT discuss me Thursday so I might also joke the plan… it’s the waiting x

  • Keeping everything crossed for you that you are discussed. Did you get a surgery date yet?x

  • They will be able to tell you what they see on the day. They may take biopsies so might not have all the answers. Will follow up with a letter too as the sedation can make you forgetful. Good luck x 

  • Your appointment is this week! How you feeling?x 

  • No hopefully after MDT on Thursday x

  • How's it going? Just a little update, I had my follow-up appointment this morning. They are not concerned about my cyst in anyway and I was given three options of how to deal with it. One was just to watch and wait, two was to remove the cyst, and three was to remove the cyst and both my ovaries and fallopian tubes. I'd always assumed that because I've already gone through the menopause, they'd automatically do the third option. I suppose it was quite comforting to know that I could just leave it alone if I wanted to. Anyway, I've chosen to have the cyst and ovaries etc. removed. I just thought it was the safest option and will give me the greatest peace of mind for the future. It will be done via keyhole surgery, but absolutely no idea when. Hopefully I can book a holiday without suddenly getting called in! Let me know how you're all getting on. I know everyone has got stuff going on at the moment and I'm hoping you'll all get some positive feedback very soon. X

  • That’s great news on mine I asked if they would do a hysterectomy and she said for any cyst removal they would do automatically… tbh I would rather them gone than any chance of anything sinister appearing! 

    i ended up in A & E earlier, thought my clots were back but they think it’s just grown again so causing more problems!

    oh well what a pair we are x

  • I've got the gastroscopy tomorrow afternoon so will finally get some feedback about what's going on.

    I was 39 when I had my cysts removed and menopause can trigger manic episodes in those afflicted but if I had been a smidgen older and without bipolar I'd have had it all out too. My mum had endometrial cancer so I kinda think reproductive organs once they've had their use are a bit of a liability.

    Good luck everyone with their appointments etc.

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  • I've got the gastroscopy tomorrow afternoon so will finally get some feedback about what's going on.

    I was 39 when I had my cysts removed and menopause can trigger manic episodes in those afflicted but if I had been a smidgen older and without bipolar I'd have had it all out too. My mum had endometrial cancer so I kinda think reproductive organs once they've had their use are a bit of a liability.

    Good luck everyone with their appointments etc.

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