8cm Complex Ovarian Cyst with CA125 of 51 - Absolutely terrified!!

I posted on here a few days ago after I found out unexpectedly that I had a large complex ovarian cyst. The consultant thinks it could a dermoid cyst but can't determine this for sure and is sending me for an MRI scan. In the meantime, my CA125 has come back raised at 51!!! I'm postmenopausal which just adds even more risk into the mix and I just feel like the odds are stacking up against me. I've had no symptoms and only got checked out because of a tiny amount of postmenopausal bleeding. I'm all over the place.

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  • Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
    when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

    when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
    more waiting…..

    keeping everything crossed for us! 

  • Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

  • I really feel for you in this post, your partner obviously has support in his mum and this other friend, do you have a support network for you? I think jembers is right, you could both reach out to macmillan for support, I bet they deal with angry cancer patients and their struggling partners all the time. 
    you cannot pour from an empty cup, so please take time for yourself too. He sounds resentful and to be taking it out of you, can you tell him how you feel? I feel sad for you that he hasn’t been supportive and would think you are wasting NHS time, that is not ok. Your partner is obviously not someone you can lean on just now so make sure you have other people around to help lighten the load. 
    could you speak to his mum?x 

  • I've spoken to his mum but I feel guilty as she gets angry with him and though she's discreet he hates it when I talk to her. Thinks I don't discuss things in a balanced way. I dunno, it's horrible what he's going through. I'm a bit isolated otherwise as I don't want to moan about him to everyone we know.

  • definitely - just want it gone now - I have a CT and a heart scan on Thursday and then its back to MDT to get a date planned - its just a huge worry x

  • You poor thing. The waiting is awful. I hope they book you in ASAP.

  • I think its men - they cant always deal with things as we do so they lash out and hurt those closest to them - I am not being sexist but we are the nurturers and they are the cave men - sometimes it helps to just give them space  - he needs to process it also and with you unwell it just adds to his mental stress - I used to work for an author who wrote all the books about men and women and why they are different xx

  • waiting for test results now - then back to MDT for hopefully a date x

  • I got a surprise phone call from a gastroenterologist asking for more details so I've got a CT scan on Saturday which is a bit of a shock. Things are calmer with my partner relationship wise but our heads are busting with health concerns. I'm struggling to eat without coughing and gagging now. It's really weird.

  • That’s great news on the CT scan, hopefully things are moving forward for you also … try not to worry x

  • That’s great news it’s so soon and I’m glad to hear your relationship is feeling a bit calmer. Might this be dysphasia? 

  • Dysphagia, sorry my autocorrect! A friend of mine gets this and has to get a wee balloon on the end of the endoscopy tube that opens her easophogus back up again, lasts for months until needs done again. No one knows why! 

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