Hello jembers, I wrote on your first post as I also have an incidental mass very similar. 
when I had my CA125 test I was told it is very likely for a raised amount even if only a cyst as it can signal other things like pelvic inflammatory. The levels can be in their hundreds just on a period so actually the fact that you went to the docs with some post menopause bleeding might actual explain the higher level.

when is your MRI? I am also awaiting mine, I had to have further bloods taken on wed and awaiting my MRI now. 2-4 weeks. 
more waiting…..

keeping everything crossed for us! 

Hi cloudy1986, thanks so much for checking in with me, it means a lot. I've been given an appointment for 23rd December (Merry Christmas!!) I'm clearly on an urgent 2 week wait due to the nature of my cyst, my age and my blood test results. It's very hard not to fear the worst. I'm trying to remind myself that my situation could be completely benign, but due to my terrible habit of googling, I've convinced myself that it's something terrible! I am genuinely sending as many positive thoughts to both of us as I possibly can. X

Oh do let me know when you hear something. I am worried my letter will say something like come in for an appointment in a month or something with no answers. This waiting game has been endless. 
I am mostly ok and calm, I also go back to work on Monday so I am a little anxious about that. Mostly getting a call whilst I’m in work, hence why I keep calling them. 
I feel like I have recently put two and two together and come up with 100. I’ve had so many symptoms for a long time and now pinning them all on this cyst. Probably nothing to do with it but the cyst is now getting the blame for the sore back and GI problems etc! Hoping one operation sorts my whole life. Haha. I have to go for an endoscopy for my GI issues on the 20th and I am dreading that bit too. Stomach and ovarian cysts can be related but because they are not right next to each other have have said to still go. But then so can cancers so that sends me in a spiral too. 
I had bloods taken again before my MRI but haven’t asked about my updated ca125. I feel to anxious to know! 
hopefully your dog is good company and keep you out on walks etc to keep your mind off things while we wait! 

Hey, how you getting on? I'm still waiting for results and trying not to have a nervous breakdown! Twice this week (Monday and today) I've had emails saying I have new test results to view on the patient portal and when I've looked, it's been the same information I've already had at the beginning of December!! My heart was literally pounding out of my chest and I couldn't stop my hands from shaking. It's really wearing me down and I just feel like hibernating at the moment, especially with this horrible freezing weather. I'm beginning to wonder if I should ring them, although surely they would have contacted me by now if they have the information. I keep swinging between thinking it's something bad and telling myself I'll probably be fine. I'm full of aches and pains that didn't exist before I knew I had this problem and I keep thinking it's because my cyst is growing and getting worse!! How have you been feeling and coping with things? X

Hello, how funny I have just come on to write to you! I called last Friday and I called this morning, my New Year’s resolution was to be my biggest advocate for my own health so I’ve just decided to ring and apologise later if I’m annoying anyone :) 

The gynae secretary today told me there is a letter for me and it’s been posted out and also sent to my GP. Thankfully I already had a GP at 3pm tomorrow so I think I am going to find something out tomorrow. She wouldn’t/couldn’t say anything over the phone other than it would come by letter. I am so glad I have that pre-booked appointment. On one hand I am so glad it’s been fast…and on the other. 
I don’t know how I feel, I’m all over the place. 
I have some other health issues with my stomach and on good days I feel like it’s unrelated and gallbladder or ulcer issues (being investigated separately) and on bad days I think I’ve got cancer and it’s spread. 
My son has a snow day so that’s keeping me from just crawling under a blanket but also so glad to have been working at home when I got the call!

I will keep you posted tomorrow when I’ve been in x

That's great that you'll hopefully be able to discuss something with your GP tomorrow. I'm sorry you've got other things going on at the same time and I can easily imagine that your mind will play tricks on you and lead you to think it's all connected. Most likely it's not! I'm also in this hideous no man's land where I'm sick of waiting but also terrified of finding out, just in case it's bad news. I have to keep reminding myself that all I can do is let them do their job and whatever it is will get sorted out. Easier said than done! I'll speak to you very soon. Take care X

I just wanted to update and let you know that I have no news. My letter had not made it to my GP nor myself since the gynaecology secretary called me yesterday. Still in limbo! X 

Hi cloudy, sorry to hear you're still in limbo. I suddenly received an update today at about 5pm this afternoon while I was out with my family. It seems that my cyst is a dermoid with nothing much of concern on MRI findings, but will require surgery which I already knew would be the case. It does have some atypical features, but I have been stepped down from the cancer pathway and I'm now waiting for further appointments to discuss treatment.

Aw that is the absolute best news! I am so happy for you. No concern. How are you feeling? Being stepped down must be such a relief. Your family must be so relieved too. Whisk surgery isn’t ideal, it’s actually so nice to know it’s nothing sinister. 

Thanks so much. I am feeling much calmer now, but don't think I'll truly relax until it's out and they've had a look at it. However, reading that I have been stepped down from the cancer pathway was a massive relief and a good sign that they are pretty confident that what they're dealing with is benign. I'm hoping that it will just be surgery to remove the ovaries and not a full blown hysterectomy, but obviously that will be explained at my clinic appointment. Just wondering now how long everything will take to get done. I'm sure you'll get your results very soon and find yourself in a very similar situation to me. The fact that they've told you they suspect a dermoid cyst would suggest it probably is and the further tests are just to break it all down and get the clearest picture of it that they can possibly can before removing it. Keep me posted. X

Hi there, just wanted to let you know that my MRI results confirmed a dermoid cyst with no particularly concerning features, but will need to be removed. Apparently it does have "significant restricted diffusion" which I've read is a feature sometimes associated with possible malignancy, but is also a finding in dermoid and other ovarian cysts. Most reassuringly, I have been stepped down from the cancer pathway, so fingers crossed everything will be fine. Thank you so much for the time you have taken since I first posted on here to share your own experience, knowledge and advice. When I was having massive panics, it genuinely helped me keep things in perspective and reminded me not to always assume the worst case scenario. X

I'm so glad they think it's not cancer and that it helped to read my experience. I remember being consumed by thoughts of the worst. The emotional turmoil was definitely worse than the operation. I still had my doubts after even the biopsy largely because so many in my family had recently had cancer its presence weighed heavily on my mind. Keep us posted with how the operation goes. Wishing you the best of health x

I'm so glad they think it's not cancer and that it helped to read my experience. I remember being consumed by thoughts of the worst. The emotional turmoil was definitely worse than the operation. I still had my doubts after even the biopsy largely because so many in my family had recently had cancer its presence weighed heavily on my mind. Keep us posted with how the operation goes. Wishing you the best of health x