I was diagnosed with Primary Peritoneal cancer at the beginning of 2023. My CA125 was very high. After chemo, surgery and more chemo I was told in January2024 my cancer was in remission and I would be on 3-monthly checkups, Every blood test prior to seeing the oncologist my CA125 doubled each time so was sent for scans which have always come back clear. My oncologist told me they don’t bother too much about the CA125 result as long as scans show nothing so don’t be too worried about your CA125 level but if I were you I would ask your consultant for an explanation for the raised CA125 so that you know definitely. Don’t be afraid to ask questions, you need answers to stop you being so scared about what is happening to you. When you get answers don’t be afraid to ask for more clarification if you don’t understand what you are being told. If you can, take somebody to these appointments with you as they might remember what was said more than you and may prompt you to ask further questions. I also take a notebook with me to these appointments so I can write anything said down. I also write any questions I have down so that I remember to ask.

I hope you get satisfaction soon.