Head Lump - anxious awaiting results

Hi,

I noticed a small lump on the back of my head and went to urgent care at the time they were thinking it may be an infection, a few weeks go by and I'm in at the GP as its grown and gotten more painful... I then get booked in for an MRI to which they say they aren't sure what it is so the next week a biopsy... at which stage he says its a lot different from the MRI so need a CT scan which I have the week after.... it's now been 4 weeks from the biopsy and I've had no results. Chased a few times, been back for more pain meds as the pressure headaches I am getting are intense, but still no results. Is it normal to take this long?

Had 3 weeks off work then went back last week as worried about pay, but am absolutely exhausted after doing a week back. And the waiting and unknowing what it is or the next steps is making me feel awful.

This lump has grown substantially and feels like a tennis ball solid on the back of my head. I can't sleep properly as can't lay on my back and have to be propped practically upright on loads of pillows. 

My husband is getting at me saying I should be forming good habits, and shouldn't be sat around taking it day by day and should sort myself out and be planning for my life, and all I want to do is rest but can't even get comfortable enough to do that properly.

Has anyone ever had a lump like this on their head and able to share any advice? What do you do to keep yourself sane waiting?

  • Hi Gilly-,

    Welcome to Cancer Chat. I'm sorry to hear you've been waiting so long to hear more about this - it does sound like it's been quite a long time. It's good to hear that you've chased this up - you can keep doing this where possible to see if it helps.

    If you experience further issues or difficulties or you're struggling due to things getting worse, then keep in touch with your doctor or the hospital about this.

    I can understand that dealing with this uncertainty is difficult so I hope that you hear more soon. Trying to take things a day at a time, focusing on looking after yourself and resting where possible, and speaking to others - including on the forum here - where it is helpful to do so, may help.

    Hopefully you'll get some more replies to your post here soon - if not you can always browse or search the forum for other discussions and people to connect with.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Gilly,

    I understand the stress you're feeling. I'm in a similar boat. I'm 6 weeks in waiting for biopsy results ( dermatologist secretary said could take a few more weeks as people are on hols!!)

    Feeling like nobody taking it seriously and so tired as can't sleep or get comfy. Painkillers to try and sleep

    Hope you hear soon

  • Offline in reply to Mwgs

    6 weeks already, and I thought 4 was unbearable! I'm so sorry you're still waiting, it's excruciating and definitely feels a bit like a failure in the system to leave us hanging for so long! The lack of sleep is a nightmare, as I've never been a morning person anyway and love a good 8 hours, so I'm definitely not my best self at the moment.

    Hope you hear soon and its positive news for you.