Hi Beaumont44, 

I just wanted to say we are thinking of you during this stressful time. I guess the MDT meeting was today and I hope that you get an appointment soon to find out exactly what is going on. It's completely normal to be scared when dealing with all this uncertainty at the moment and after having been through all these tests. 

Let us know what you find out - you are not alone though and many members of our community have been through this before and will hopefully come and say hello soon and share their stories with you. While you are waiting, as there is nothing harder than waiting for a diagnosis, I thought I would share with you our helpful tips to help you cope while waiting for news. 

Best wishes, 

Lucie, Cancer Chat Moderator

Thankyou for your response , nothing today but hoping a phonecall in the morning x

Hi everyone, it’s been a while since I’ve posted and haven’t felt like talking about my experience.So this is an update of what’s happened to me. I was due to have my third round of chemotherapy on 16th January but when I had my oncology appointment my oncologist postponed for a week as I had been constipated for three days. She gave me laxatives to take and if I they did not work by next day I had to go to hospital. That night because of pain I was taken to hospital and spent the night in a+e then moved to a surgical ward. That afternoon I was taken to theatre to have my bowel tumour fitted with a stent because it was getting bigger. I was very scared as they were only giving me sedation which was the most painful procedure I have ever had done.                                             
Fast forward 3/4 hours i was screaming the ward down with excruciating pain and finding it hard to breathe. I then collapsed with what they called a peri-arrest the period before going into cardiac arrest. My husband and I were then told that the stent had caused the tumour to rupture inside my bowel and that my husband was to contact family to get to the hospital. I was told that I needed major surgery to save my life. Friday 17th January I woke after 7 hrs in surgery in intensive care with my husband at my side and then the surgeon came into the room to say that they removed everything and they had sent everything to pathology for testing which would take three weeks. I was also given the news that I had to have a stoma fitted and cannot be reversed. I was so upset and very emotional and honestly did not know what to do with this news but then remembered that it had saved my life.                                                                                                                                       
I stayed in hospital for 4 weeks and have been home for two weeks. I am still on strong pain relief and starting to get on my feet with going out for very short walks with my husband. I will need to have another operation when I have recovered from this as I have a tiny spot on my liver that will need to be removed at a different hospital in Scotland. 

Hi that is an awful lot to go through , so glad to hear you are on the other side now although you still have another op to go , hopefully see light at the end of the tunnel , must have been a very scary time for you and your family , sending lots of love and thinking about you..take care xxx

Hi Christine, I have been missing for a while from the chat which I have just posted about explaining what has happened to me recently. I am so sorry to hear about your news. I can honestly say after my colonoscopy on 3rd September last year when they told me the had seen an abnormality I knew what it was. I had been unwell for the past year thinking it was my irritable bowel syndrome, but something felt different. I got the diagnosis on October 16th that it was a rectal tumour. You will have so many questions and scenarios playing around in your head but that’s how most people feel until they get a diagnosis and then a plan of action on how they are going to treat you. Once you start your treatment you feel better as something is being done for you. I stayed positive and did lots of meditation and positive affirmations which really helped especially after my recent trauma. I am here if you need to talk anytime. Xx

Willow6, I have just read your update. I am so sorry for all that you have been through. Thankfully they have saved you. Please take extra care. Xx

I was putting my symptoms down to IBS thats why I put off going. When I started having no control I decided too big a change. I am a positive person, I am just really wanting to know what I am dealing with. 

Take care everyone. Ty for the wRm welcome to the forum no-one wants to to join. Xx

How did your appointment go? Xx

Hi it went well , he said again how lucky I was to not end up with a stoma , he's never done the surgery the way he did so I thank god for that , cancer all gone no more treatment so basically just get on with it now xx

That's amazing. Great to hear.

So happy for you.

Thats is wonderful news. Congratulations. 

That’s really good news x

Hi how are you and your daughter doing? Xx

Hi how are you and your daughter doing? Xx

Not great I’m afraid, pet scan confirmed spread to liver.  She starts chemo another 6 rounds tomorrow xx how are you? X

Oh no that's not the news I wanted to hear bless her , hope she's keeping positive , what will happen will they operate on both areas at same time after chemo? Xx

Oh Nannynic, I am so sorry to read this.  I've been thinking of your daughter & yourself.  Please keep us updated. 

Not too sure at the moment.  See how chemo goes. Xx

Thank you of course I will let you know how things go x

Hi just wanted to send a quick message to say I'm thinking of you all , hope the chemo isn't too bad ..lots of love ️ xx

Hello, Beth gas round 2 chemo tomorrow.  Not sure if I updated you but her cancer is now stage 4 spread ti her liver xx

Yeah you did , must feel like a whirlwind, I cant imagine what you must all be going through , hope you are all keeping positive , lots of love xx