After colonoscopy, doctors think I may have rectal cancer - never been so scared

After my colonoscopy the doctors words were a blur but indicates serious and cancer , had ct scan mri and cpex in morning, weds is mdt meeting then I assume I'll get an appt to see what's happening , I have never been as scared in my life . 

Parents Reply
  • Morning g sorry to read this, it is a very scary time not knowing.  My daughter who has only just tuned 27 finally got an urgent referral for a colonoscopy within 2 weeks.  She had been seeing her go with symptoms since 2017.  They put it down to hemarroids as she was so young they did not think it coujd be a tumour. She was diagnosed with stage 3 colorectal cancer in September last year. She has had 6 rounds of chemo  ut thus has not shrunk her tumour enough to have surgery. So more chemo tablets this time and radiotherapy .  I will be thinking of you please let me know when you get the appointment xxx

Children
  • Thank you for your quick response. Hopefully I will hear soon. I am in scotland so not sure of our wait times.

    You have been a wonderful support for your daughter. I really wish I had someone who could support me. I am so trying to not over think it however, it is all I have been thinking about. I am so glad the gp I saw got me to do fit test. I only went because of no control of my bowels. In chatting ith the gp I realise now how many symptoms I have.

    I hope your the next lot of treatment shrinks your daughters tumor enough so she can have her surgery. I wish GPS would not take age into it, surely its the symptoms that are important.  

    Look after yourself to. That's important. 

    Christine.

  • Hi Christine, takes me back to last July reading your post , everything for me was a 2 wk timescale but like you say scotland could be different , I had colonoscopy on 28th July and got diagnosed on 14th Aug but they did say suspected cancer at the time of colonoscopy , I had 4 rounds of chemo and surgery , my only symptoms were blood in poo ! I have hopefully my last visit to consultant tomorrow as there's no lymph node involvement and no more treatment needed , I hope all goes ok for you , I did have lots of support but the biggest support is on here to be honest , friends and family are there but it's good to chat to people going through the same they understand more going through the same , keep intouch thinking about you xxx

  • Thank you for your response. I am so happy it has worked out well for you and no stoma required. My main worry is who will look after my 2 cats plus, the stray who looks like he is moving in, I also have a few stray visitors. 

    My sister lives close by but she has heart failure (after 4 heart attacks, not suitable for scents or surgery) she is also recently registered blind, her husband and their daughter help support her. 

    I am trying to stay positive and hope its just diverticulitis. Scary when gp says it could be cancer but I already knew that. 2 weeks isn't long to wait for colonoscopy. I am at the stage where I just want to know. 

    Sorry for jumping on your thread. Xx

  • Don’t say sorry for joining the chat, this has helped me so much.  I know it’s not happening to, but I wish it was me not my daughter. Xx

  • Hi Christine, I have been missing for a while from the chat which I have just posted about explaining what has happened to me recently. I am so sorry to hear about your news. I can honestly say after my colonoscopy on 3rd September last year when they told me the had seen an abnormality I knew what it was. I had been unwell for the past year thinking it was my irritable bowel syndrome, but something felt different. I got the diagnosis on October 16th that it was a rectal tumour. You will have so many questions and scenarios playing around in your head but that’s how most people feel until they get a diagnosis and then a plan of action on how they are going to treat you. Once you start your treatment you feel better as something is being done for you. I stayed positive and did lots of meditation and positive affirmations which really helped especially after my recent trauma. I am here if you need to talk anytime. Xx

  • Willow6, I have just read your update. I am so sorry for all that you have been through. Thankfully they have saved you. Please take extra care. Xx

    I was putting my symptoms down to IBS thats why I put off going. When I started having no control I decided too big a change. I am a positive person, I am just really wanting to know what I am dealing with. 

    Take care everyone. Ty for the wRm welcome to the forum no-one wants to to join. Xx

  • How did your appointment go? Xx

  • Hi it went well , he said again how lucky I was to not end up with a stoma , he's never done the surgery the way he did so I thank god for that , cancer all gone no more treatment so basically just get on with it now xx

  • That's amazing. Great to hear.

    So happy for you.

  • Thats is wonderful news. Congratulations.