After colonoscopy, doctors think I may have rectal cancer - never been so scared

After my colonoscopy the doctors words were a blur but indicates serious and cancer , had ct scan mri and cpex in morning, weds is mdt meeting then I assume I'll get an appt to see what's happening , I have never been as scared in my life . 

Parents
  • I'm being told by the hospital that the MDT will hopefully discuss my case on Friday, and that they have results back from biopsies, CT and MRI.

    So I guess I should be having discussions soon about the exact diagnosis and treatment plan? Does that sound right?

    I'm so scared it will be bad news and/or very complex and that it has spread.

  • Hi James. I don’t want to give you false hope but they basically told me I had cancer when I had my colonoscopy. I was expecting to be discussed at the MDT meeting but wasn’t as the scans and biopsies showed no signs of cancer. I have since had 3 pre-cancerous polyps removed and need to go back in 3 years. Hoping you have a similar outcome

  • Hi Cam, and everyone.

    Just realised I didn't post on here, post-MDT.

    I hope you're all doing OK.

    So, the cancer nurse phoned me post-MDT. The short version: no signs of any spread to other organs (which is a relief); tumour is adenocarcinoma (which I'm told is the most common, and that's good); they think a couple of lymphs (I think?) Look a little enlarged, so they want to do  PET scan next to decide whether to go straight to surgery or do some oncology first as they're close to the tumour).

    So, overall, fairly good news, in the grand scheme of things, I think.

    I'm sure I'll be having more detailed discussions with the hospital soon, and am lucky to have an option for a 2nd opinion. 

    I don't know enough about it, as I don't want to go down Google rabbitholes and scare myself, but I would imagine chemo/radio/immuno would make sense to reduce tumour size, pre-op, and reduce the likelihood of needing a stoma. Does that sound right? They seem to be leaning towards surgery first and I'm worried about stoma (whilst still overall being relieved they're confident of effective treatment, and looking like no spread)

  • Hi James your story almost mirrors mine , I had 4 cycles chemo then surgery , the stoma was my worst nightmare but thank god by some miracle I got away with it ! Although it was nailed on I would end up with one , but that's not something at this point you need to think about I know I didn't, I just put that to bk of my mind and focused on the chemo, hope all goes well will be thinking of you xx

Reply
  • Hi James your story almost mirrors mine , I had 4 cycles chemo then surgery , the stoma was my worst nightmare but thank god by some miracle I got away with it ! Although it was nailed on I would end up with one , but that's not something at this point you need to think about I know I didn't, I just put that to bk of my mind and focused on the chemo, hope all goes well will be thinking of you xx

Children
  • Hi Beaumont, Nic and all

    I hope that your daughter's scans come back with good news, Nic.

    I have my PET scan on Wednesday. They've said they'll try to get results back quickly. Doubt it'll be this Friday, so I guess next.

    Then they decide about chemo or similar or straight to surgery. Hoping I can keep mirroring you, Beaumont, and end up with no bag, but am worried about that in my case 

    I know I should be glad that it's all happening quite quickly for me. From colonoscopy, mei, ct, MDT meeting and feedback, and next PET all in 23 days. But the speed of it all is scaring me. I'm trying to tell myself it's brining me closer to treatment and cure, but I'm also so scared about it being life changing in so many ways. I'm both grateful and blessed whilst also being fearful.